Search results

I'm so sorry you've had so many surgeries, too, Rosie, and that you have a hysterectomy coming up in March. I hope all goes very smoothly with that. Will be thinking about you.

Thanks so much for all of your kind and helpful messages! I'm so glad that most of you have had little problem with GA, in terms of ME. I just feel like with each consecutive surgery, although maybe it's all the surgeries and not just those with general, my memory has gotten worse. I do tell...

I've assumed it was an all-at-once removal--the doctor didn't mention Mohs, which might have made sense with this issue. His reply to me did make me feel more confident in him, but I will ask him if I can also talk to the anesthesiologist. I try always to talk to the anesth person ahead of...

Thanks, Arnie. I know the answers to most of those questions--or will, after the surgery (like, for example, whether I'll need radiation therapy or whether the lesion removal got everything.) And I think the area being removed is small (it's a small lesion), though the surgeon won't know how...

Thanks so much--I always need prompting to be more assertive. (You'd think that, having been ill all but 8 years of my life I'd be a better self-advocate, and generally I am but not "pushy" enough.) Thanks for your good wishes, too! Take care!

Edited for update: Got this just now from the ENT surgeon, who replied promptly to my message this a.m. So I will go with the GA and just ask for as little sedation as is safely possible: "Unfortunately the surgery would be very unsafe under local anesthesia. I need to do a wide excision to...

I had one about 19-20 years ago, and it wasn't painful (like perchance dreamer, I found it less uncomfortable physically than a cervical exam, because my cervix is apparently not easy to see). However, if you have a Hx of childhood sexual trauma, it can be pretty triggering, as I discovered.

Whoa, wait--I missed something: olanzapine (which I've been taking since 2008, originally prescribed for MDD secondary to severe weight-loss post-surgery) shrinks people's brains?

As someone who may soon be trying low -dose Abilify, I have a question about the possible/hypothesized effects on the mitochondria. If ME does have as its root cause mitochondrial malfunction (and my PA and doc at Stanford offered this as their best theory for what goes on in pwME), and if...

Sarah94, I'm so glad that you didn't need ingrown-toenail surgery. I think how local anesthetic injections feel depends so much upon the location of the injection (more painful in the mouth than, say, in the arm--I just had to have a tongue biopsy a few weeks ago, and the injections into my...

Leokitten, I'm really glad that this helped you. I have another friend with ME who has similar sleep-cycle patterns and who is now going to ask her doctor about LD Abilify. Because of other medications I take, my sleep cycle is pretty normal--I fall asleep readily at bedtime and, while I feel...

Milo, I figured it was something like that--i.e., where the placebo effect could've played a big part. Thanks so much for explaining and clarifying, and for the link.

Yes, Trish, they told me immediately that it's experimental--not FDA-approved. My sense was that they try all new patients on this; my PA cited a "cohort study" in which 70% of patients had some degree of benefit from the drug. I don't know the specifics of what a cohort study is--obviously not...

I was on LDN for a while when my primary-care doc thought maybe my fatigue was due to chronic pain at night (not that I noticed that). It gave me insomnia when I took it before bed, and taking it earlier in the day didn't do me a bit of good. It seems a number of people here have had some help...

I've been scanning through some other posts to this thread and am wondering if Abilify is the right treatment for me to try. I can get up pretty easily by 8 a.m.--not that I couldn't sleep longer (I never wake up feeling like I've had enough sleep), and my main sleep disturbance issue is...

I realize I'm about 3 years late to this thread, but I wanted to respond since I've just been seen at Dr. Bonilla's Stanford clinic. I haven't yet tried Abilify, but the plan (once my psych gets me off Zyprexa, an atypical antipsychotic--prescribed years ago for depression in my case and which...

I like your mixed metaphors, Peter! :thumbup:

Yes, I just wish everyone here had access to a clinic like the Stanford one. I am particularly lucky to live where I do (about 1.5 hrs from Stanford).

Sorry, NelliePledge. "Hx" is medical shorthand (in the US at least) for history, and JIA is juvenile idiopathic arthritis, what Juvenile rheumatoid arthritis is now called (because they don't know what the h*$

Wow--well I would definitely defer to you with your research experience, Jonathan. My doctors were probably going upon experience with specific patients rather than upon solid research. Thanks!