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Oh yes, Rob would flame out if he had to use windows. Basically, he's an astrophysicist with lots of programming skills/background, and when teaching in higher ed finally killed his soul, he came back to the national laboratory where he did his post-doc and helps build databases to allow other...

Haha, very true. Thankfully mine is a young woman who is not full of herself, is compassionate, and somehow succeeded in med school and residency among probably many egocentric colleagues and professors.

Well, I don't have any Apple products (my husband, a computational cosmology systems engineer, is Linux all the way and Android when necessary), but the Apple Watch does sound tempting! Thanks for the info!

M.E. Linda, Thanks--this is very helpful. I'm really sorry that you have to deal with POTS--that is a really nasty condition (I know a friend who was diagnosed with it a few years ago, and she absolutely hates having to do the TTT). And worse that you have to wait so long to get an appointment...

This makes a lot of sense, @SNT Gatchaman . Thank you.

Yes, I have had about 30 years with this (29 to be exact), but I didn't even try to do pacing intuitively--thought I needed to keep pushing myself because exercise was good for my RA, and intellectual activity was necessary for my degree program and later, my brain function more generally. So I...

This is making me think about how I would take my pulse during or right after exertion back when I could push (and was pushing) myself to do vigorous physical exercise (at least 80 mn of water running in the deep end of the pool, or riding fast on a stationary bike) because I had read that one...

Interesting, Creekside. The "quick-and-dirty" explanation for ME (with their caveat that it's still a very poorly understood illness or constellation of illnesses) that the Stanford folks gave me was that ME was due to BOTH mitochondrial dysfunction and neural inflammation in the brain. They...

Very interesting that some people will experience tachycardia and others brachycardia in relation to PEM. Definitely don't understand why that would be--or why, for me (at least with the little data I have so far), PEM seems to go hand-in-hand with arrhythmia.

Thanks, Trish. Does the Visible app work with your Fitbit? I'm trying to figure out what's the least expensive but still accurate and helpful technology to get to help me keep track of this. I've found that trying to just take my pulse when I awake first thing isn't very accurate, because my...

I think olanzapine isn't first line of defense for MDD, but at the time I was already on both escitalopram and buproprion. Also, I think olanzapine is more apt to be used for MDD in individuals with anorexia, which I've had a history of since age 19, since it can increase appetite. (At the time...

Thanks, everyone. This is all very helpful. I have two more questions--sort of a follow-up to everyone's contributions but especially to @hibiscuswahine 's initial response. Questions: has anyone else experienced arrhythmia as part of PEM or ME symptoms more generally? And for those of you with...

Sorry I misunderstood.

Thank you for this very thorough and helpful reply, Hibiscuswahine. From what you and @Trish say, I definitely will start keeping track of my HR nd HRV. Other than the episodes of atrial tachycardia or simple skipped beats, I generally haven't paid attention to my heart rate. And I also nearly...

I'm new to an ME diagnosis (got it Dec 27, 2022, although I'd had ME symptoms since 1994 if not before) but not new to cardiac issues. I've had lots of testing as a result of chest pain while exercising (nothing wrong with my heart; in retrospect an ME symptom related to pushing myself too hard)...

I realize I'm very late to this thread, and hopefully you've received helpful guidance on this by now. I first started feeling my heart "skipping beats" (and I'm nearly always aware of that sensation, though it's most prominent when I'm at rest and not distracted) when I had pushed myself far...

Thanks, Jaybee--appreciate the info both about the alleles and related treatment study and also the testing company. If I may ask, what prompted you to get the testing done? (My ME specialist hasn't mentioned doing such testing, at least not yet, and it seems as though the testing is aimed...

Jaybee, I am curious about your ME diagnosis. It seems very specific (to a non-scientist), and I'm wondering if you can explain the designation and how it was determined that you have a specific type of ME? Thanks!

I don't have any such degree so am ignorant about all of this, but I was wondering that about excluding non-responders also.

I'm like you, DokaGirl. None of my 5 vaccines (or Evusheld injections, though I don't understand the prophylactic monoclonal antibodies mechanism well enough to know how that compares with the vaccines) have helped or worsened my ME symptoms.