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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Hi everyone, I don't have much time today so I'm not replying to everything I'm afraid. I wanted to still come back and answer a few things. Here are a few papers that go into detail regarding the brain being oversensitive or overactive in generating pain (brain retraining for fatigue/PEM/...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    I'll do my best to answer everything so please bear with me if I miss any responses. I'm just one person! No except that's not really it. The brain actually creates the symptoms. Most (I'm sure not all) brain retraining programmes and techniques are based on the work of John Sarno. So while...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    I respect your right to email them but there are a couple of inaccuracies here that I felt important to address. 'Instead, they suggest the brain is misinterpreting harmless bodily signals as harmful.' This is not quite right. It's not that there are harmless signals that people are making a...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    This post and some following posts have been moved or copied from; Unevidenced recommendations of brain retraining in Bateman Horne Centers clinical guide for ME and longcovid I think that brain retraining could result (however briefly) in an increased sense of personal control over the illness...
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    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    Hi, I'm still here. I don't think I'm part of any 'brain training gospel group' (what are the entry requirements?!) I just got better using it and know many others in the same boat.
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    Three part article on cognitive therapies, mindfulness, Garner etc., 2025, Long Covid Advocacy Substack article

    There is very little here that unpicks why this is problematic. It is descriptive 'Paul Garner says this, SIRPA says this' but nothing about why it's wrong. This is a shame. SIRPA has thousands of clients reached through their practitioners, is my understanding. Thousands of recoveries from all...
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    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Except in the case of M.E, there is (as yet) no objective evidence of actual disease. There is no biomarker, right? Real symptoms, yes. Disease, no.
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    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Many thousands of scientists disagree with you on this, though. Pain is a warning system but a bit of a primitive one. It's job is to warn you are are in danger, so in this case you move your hand. It's more important to move the hand and avoid harm than it is to figure out that it's a fake...
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    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Have you ever seen this? Kind of cool, right. And it shows beliefs can indeed bring about symptoms.
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    In the world of brain retraining, this makes sense though. You had some symptoms. The brain gets the message it isn't safe (because symptoms normally mean the body is ill, aka there is a threat and you actually need to rest). You pushed through them. The brain is then actually getting another...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    I am repeating myself but not currently. No. And that is a problem, but I don't personally believe a brain retraining study would be allowed to go ahead on M.E. as things stand. I said that in an earlier post and someone responded saying they would be ok with that, which is great. But I don't...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Are you aware they have helped literally thousands of people to recover? I simply wouldn't have recovered if it wasn't for them. That doesn't mean I think they are perfect humans but I have seen so many testimonials from people they have helped and the PRT/EAET training means they will reach...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    If you reread my post, you'll hopefully see me say you can get your head around the basics in a few days. It's just that that's the basics and also some people do this, dismiss it and miss out on the chance of ever deepening their knowledge to give it the best chance of working. For some people...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    CBT and brain retraining have some key differences. In fact, brain retraining incorporates some CBT in it but there is lots to it beyond that. I did an NHS CBT course when I was ill. It made zero difference to me, I felt like I learnt nothing useful in it. It was only when I learnt about brain...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Sorry, I realised I missed this. I acknowledge that many come out of doing the LP feeling worse. I am not a fan of it. These things aren't black and white, not all brain retraining programmes are created equal. I don't suggest it if people ask what to try. With that said, I think I now see why...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    This is my first time using the multiquote function, so I hope I've got it right. I'm sorry but I don't want to do that. However, I can promise you I don't want to drum up any business for anybody. I believe there is enough brain retraining info online now that you can find nearly everything...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Ok I am back and am going to try to respond to as much as I can. Do you accept that - that lots of people will recover, whether they jump on circles and shout stop!, or go cold-water swimming or even if they don't do anything in particular and just let time pass? Yes, absolutely. What you...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Just a quick post to say I'm not ignoring the responses, I'm just very busy today but will be back to reply. Thanks.
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    *This is not biological science. I am intrigued as to why you should think it is* Because of my lived experience of recovery, is a large part of my answer. I used brain retraining, I wanted to know more about the science that backed it up and have read enough to more fully understand my own...
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