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  1. Hoopoe

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    The "loud crickets" explanation seems to make no sense because then there would be a lot of similar cases and we wouldn't be wondering what it was.
  2. Hoopoe

    RCPCH conference 2019 abstract: When chronic fatigue syndrome leads to mutism, Moeda et al

    My interest is in the plausibility of the idea that cognitive ability declined due to disuse. Presumably this is what the authors think.
  3. Hoopoe

    RCPCH conference 2019 abstract: When chronic fatigue syndrome leads to mutism, Moeda et al

    Am I the only one that finds this strange? It may well be true that the patient preferred physical activity over talking but this shouldn't normally result in notable deterioration of cognitive ability. Am I wrong? The authors seem to suggest that the cause of the cognitive deteriorarion was...
  4. Hoopoe

    RCPCH conference 2019 abstract: Characteristics of a patient population attending a specialist outpatient service for CFS, McCourt et al

    If you can't move the ball to the goal, move the goal posts... People that tend to define recovery like this are tacitly admitting that they cannot obtain satisfactory recovery rates when recovery is defined the way everyone else understands it.
  5. Hoopoe

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    If the NIH funded the earlier nanoneedle work then they still deserve some credit. They aren't doing as much as they should but they're still doing something, which is more than most other funding bodies are doing. I find it concerning that on Twitter anything the NIH does in relation to ME/CFS...
  6. Hoopoe

    new blog post by skeptic doc Harriet A. Hall MD: Chronic Fatigue Syndrome and Rituximab

    What about cyclophosphamide? It seems to me that a RCT of it was justified by the earlier Rituximab findings, which are now recognized as spurious. There no longer seems to be a reason to think cyclophosphamide could be effective. Edit: I agree that the article itself is a little confusing. It...
  7. Hoopoe

    Blog: The PACE Trial: How a Debate Over Science Empowered a Whole Community [Carolyn Wilshire/ME Association]

    I think long term patients can have a distorted view of recovery would be like. They want to be well again and begin a new chapter in their life where can forget about the time they were ill. They also have been ill for so long they don't remember what normal feels like. Their life is adjusted...
  8. Hoopoe

    Who is Simon Wessely?

    Saying that CFS is perpetuated by thoughts and behaviour is just a nicer way of saying it's all in the head of patients. The patient thinks they have a chronic neuroimmune illness, while Wessely et al claim the condition is reversible by challenging unhelpful beliefs and increasing activity...
  9. Hoopoe

    Request for help with possible TV documentary on ME

    That's a great opportunity to explain problems with the cognitive-behavioural approach to ME/CFS, the PACE trial, and how this affects patients (lack of research, patients dying from neglect, mothers being terrorized). The people to interview for this would be Keith Geragthy, @Tom Kindlon...
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