Am I the only one that finds this strange? It may well be true that the patient preferred physical activity over talking but this shouldn't normally result in notable deterioration of cognitive ability. Am I wrong? The authors seem to suggest that the cause of the cognitive deteriorarion was...
If you can't move the ball to the goal, move the goal posts...
People that tend to define recovery like this are tacitly admitting that they cannot obtain satisfactory recovery rates when recovery is defined the way everyone else understands it.
If the NIH funded the earlier nanoneedle work then they still deserve some credit. They aren't doing as much as they should but they're still doing something, which is more than most other funding bodies are doing.
I find it concerning that on Twitter anything the NIH does in relation to ME/CFS...
What about cyclophosphamide? It seems to me that a RCT of it was justified by the earlier Rituximab findings, which are now recognized as spurious. There no longer seems to be a reason to think cyclophosphamide could be effective.
Edit: I agree that the article itself is a little confusing. It...
I think long term patients can have a distorted view of recovery would be like.
They want to be well again and begin a new chapter in their life where can forget about the time they were ill. They also have been ill for so long they don't remember what normal feels like.
Their life is adjusted...
Saying that CFS is perpetuated by thoughts and behaviour is just a nicer way of saying it's all in the head of patients. The patient thinks they have a chronic neuroimmune illness, while Wessely et al claim the condition is reversible by challenging unhelpful beliefs and increasing activity...
That's a great opportunity to explain problems with the cognitive-behavioural approach to ME/CFS, the PACE trial, and how this affects patients (lack of research, patients dying from neglect, mothers being terrorized). The people to interview for this would be Keith Geragthy, @Tom Kindlon...
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