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https://link.springer.com/article/10.1007/BF02698479

Furedi has written on CFS, in an article about medicalization. I think this tells me he is writing about things he knows nothing about. Unfortunately sci hub is not working at the moment so I can't read it.

The illness model they propose tells us something about them. They did not gradually develop this model while being guided by evidence. They pulled it out of thin air, asserting that it was the truth. This model then gave them the authority to pressure patients, for example in the context of...

Please do.

The real problem is that medicine is generally bad at handling patients with unexplained illness. They think unexplained means somatizing, and that their job is to manage the somatizing patient by being nice or deceptive, but they have not shown that somatization is a real thing or is occurring...

It is insulting to suggest that patients cannot tell the difference between deconditioning and chronic illness, or that they erroneously think to be ill, and other similar things. It is also flawed logic, as it's ultimately based on the idea that absence of evidence is evidence of absence.

This may be off topic but transient responses to some drug or supplement seem to be typically interpreted as placebo effect. It's important to realize that this interpretation is not based on actually observing a "placebo effect" but merely a transient self reported response. It seems plausible...

Mental disorder seems to often be informally defined as any behaviour or opinions that are sufficiently distant from what is considered normal. This means that in one culture, a behaviour could be mental illness while in another it could be normal.

What an amateur. She should have promised big healthcare savings, gotten funding for a large unblinded subjective RCT, switch outcomes and then publish in The Lancet.

Is it at all plausible that neck pain could come from poor posture, which in turn comes from weakness? In the sense that we are exhausted and don't have a good posture because of that. Or much of a posture at all if we lie down a lot. This is relevant because if PWME have neck pain they now...

An updated IOM report which includes a section on treatments would also be useful.

We need to get the NIH to publish a position paper that debunks this ridiculous narrative that PACE is being unfairly criticized, or that patients are hostile to researchers in general or criticize because they "don't like" the findings as opposed to the methodology being terrible and...

Meanwhile evidence that CFS is perpetuated by thoughts and behaviours is yet to be produced. The tricky part is showing that these thoughts and behaviours are not a normal or appropriate response to being ill. You have to take all the factors that are specific to ME/CFS into account. The high...

Can anyone copy and paste the CBRQ here?

That is how we should proceed. It seems likely that subsets exist. With every subset identified, figuring out the remaining ones gets easier.

@Jeff_w how is traveling in a car when you have CCI?

Sounds very good. Almost too good. Let's hope this lasts.

Would it be a good idea to make an experiment with some brain blood flow enhancing intervention to see if it improves cognitive impairment?

She seems a little defensive about MUS. Is her view that MUS are the real somatizers, while true ME patients have an organic illness?

Fatigability is when the person quickly becomes fatigued when doing things, even when they were not feeling particularly fatigued when they started. Within an hour, I can go from feeling relatively energetic to collapsing on bed. This is a problem of fatigability.