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In some way, seeing all the chaos, confusion, scandals and weird ideas about the coronavirus makes me feel a little better because for once it's not happening in the field of ME/CFS. It shows I think that this is typical for situations where there is a lot of uncertainty.

Yes. However I suspect if the sample size was larger there might have been statistically significant and dose-dependent changes. Whether these reflect an effect on the illness would have been unclear. With side effects so prominent it could also be difficult to blind patients.

My summary of the results: A small improvement on self-reported outcomes with the lower doses, no improvement or small worsening with the larger doses. This patter is seen in all outcomes. Sample sizes are very small. Under serious adverse events, one occurrence of tachycardia and...

If only arriving at the truth was as simple as just listening to authorities. Or as simple as listening to anti-authoritarian figures likes Mikovits.

Re. easing lockdowns, in Italy I suspect it could be a disaster. People have had enough of being isolated and are out and socializing to make up for it.

Merged post An article In English on what went wrong in Italy It's also interesting to see the differences in how the Lombardy and Veneto regions reacted and the different outcomes they had. https://www.ilpost.it/2020/05/07/two-months-that-shook-lombardy-to-the-core-coronavirus/

Thanks for looking more closely at this @Hutan. Maybe I can say it. Believing that you can control the situation has almost zero relationship to the actual outcome. This is in extreme contrast to the general belief of society that we patients are able to achieve a recovery if only we did this...

The responses to this article could reinforce the belief of the investigators that patients are neurotic. Maybe someday they'll consider how it feels for highly stigmatized and neglected patients to have a group of researchers regularly searching for flaws in patients thinking and behaviour...

Why would you have to control for time since symptom onset in a longitudinal study? I don't understand what was done here and why.

Are PVFS and ME/CFS similar entities?

Maybe he thinks PVFS is just fatigue, or he is disagreeing with people who suggested he had PVFS because those people viewed it as fatigue.

I'm wondering if the comment about this not being post-viral fatigue syndrome reveals his own ignorance. He describes how other people misunderstand the illness. He thinks it's clearly not postviral fatigue syndrome. Maybe he says this because there is a mismatch between what he thinks PVFS...

Sounds familiar. Also sounds familiar.

SARS-CoV-2 was circulating in France in late December. https://www.bfmtv.com/sante/coronavirus-le-professeur-cohen-affirme-qu-il-y-avait-un-cas-de-covid-19-en-france-des-le-27-decembre-1906757.html Google translation...

https://www.nap.edu/read/19012/chapter/6#78

Recovery is a mindset and I'm recovered, said the patient from the bed he was confined to. The lightning process practitioner was thrilled she had been able to make the patient recover.

My guess is the decision to conduct a clinical trial of kynurenine means they have some new information.

I don't think they would have a problem claiming that the stress of the pandemic explains development of ME/CFS. It would be very biopsychosocial.

They improvements could disappear in a phase 3 trial, but how does one explain the association between greater improvement and HLA alleles? Is it possible that the treatment is no better than placebo, but the HLA alleles are protective and improve outcomes?

A newspaper is reporting that 61% of the people with suspicious symptoms and/or contact with confirmed cases in two of the hardest hit towns in the Bergamo province had positive serological tests. A second lab found a rate of 59%. At one hospital in Bergamo, the percentage of healthcare workers...