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It appears that having published research is a conflict of interest in some cases.

Maybe they also gave negative feedback and Cortene is lying about them too.

You're right. It could also be that (undiagnosed) ME and vestibular problems occur together often enough that at least some vestibular doctors would independently discover PEM and pacing.

Okay, but why does this document seem to describe something resembling PEM and advises something that sounds like pacing?

This documents reads like competent recommendations for living with ME (or at least there is large overlap). That could mean that the underlying biology in ME and vestibular disorders is similar (perhaps not in the location being affected, but in there being some control system that is...

Don't fill it out. They will likely use anything they can to advance their agenda and ignore the rest. Misleading readers with cherry picked information and weasel words is what they are very good at.

Fun times. The women were treated with enforced rest, to the point of not being allowed to feed themselves.

No research is better than bad research, and I think it is fairly clear by now that this is bad research. They appear to have decided that ME is accurately described by a learned helplessness / uncontrollable stress model. In particular they claim that ME involves excessive levels of a receptor...

This is beginning to look like a disaster that can be recognized from far away.

Expectation isn't the only factor driving biased responses.

That seems to be equally consistent with the positive effect being merely due to bias (expectation that the treatment will work or could work).

I suspect neurasthenia never referred specifically to the entity chronic fatigue syndrome. In a textbook published in 1921, neurasthenia is only briefly described as condition twice as common in men than in women, characterized by rapid fatigueability and somehow closely related to hysteria...

Are we sure that we're not misunderstanding something? Are they really saying that randomization is sufficient for a clinical trial to achieve a low risk of bias status? Why is there no widespread outrage over this apparent attempt to pass off garbage methodology as good?

Is it useful to send them this study about albuterol vs placebo in asthma to illustrate that studies that do not properly control for bias in self-reported outcomes are at risk of producing garbage quality data? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3154208/ This is a double blind...

What was the therapy like? Do they try to convince you that you're sick because you're gaining so much from it?

I'm reading through parts of that book now (not sure which edition). I have now arrived at the section dealing with mental disorders. There is this paragraph which seems revealing: Here's a translation, with some help by Google. So they say that heritability for mental illness hasn't really...

Interesting. I had the feeling there might be a certain ideological closeness. The policy on ME is basically discredit patients, prevent them accessing support and help, and let them die from neglect. There seems to be strong ideological basis to this. As far as I know, eugenic laws in Nazi...

What the fuck.

Little risk of that, as unimportant things like seeing a doctor are put off until the relapse is over.

Soon in a Reuters article: "Professor Sharpe says the anti-science activists made plans to tase him."