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They seem to do pragmatic (and feasibility) trials to collect data to find out which outcomes at what timepoint are most likely to give a positive result in a later clinical trial. The outcomes are not chosen according to importance to patients, ability to compare to other trials or conditions...

At least it's not the lightning process.

Maybe this is similar to the Havana syndrome where exposure to toxic chemicals causes brain damage in some people that are predisposed to it. In more classical ME, the damage could come from the initial infection and immune response.

Thank you for pointing this out. One would need a clinical trial or some other compelling data to know whether this was true or not. I doubt these exist.

The psychiatrist involved in this study insists it's not mass hysteria The reasoning here is interesting because it suggests that normal human beings that receive ordinary medical investigations might get a mass hysteria diagnosis instead. Do you have to be from an upper socioeconomic...

I wanted to post this but Chesire beat me to it. They have the nerve to pretend this is for standing up for patients too. No it's just doctors that like Fink because his scam gives them the excuse to get rid of inconvenient patients.

It seems to be pesticide poisoning.

Yes, they really mean it Unfortunately there are some serious limitations in this study. There was no control group or independent observer blinded to the diagnosis. The patients also came from FND clinics which could mean that the observers were personally invested in finding evidence...

Interesting choice of words.

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Common sense tells me that if this general approach worked, there would be enthusiasm from everyone involved and there wouldn't be a crisis.

Sounds about right. To do that, they need patients to be someone else's problem. They can then be that someone else.

It's yet another person that proposes a solution coming from deep within the same belief system that created the problem in the first place. These kinds of solutions will perpetuate the problem rather solve it. The article has some good parts, such as the recognition that there is a huge...

Judging by the abstact titles, there seem to be more subtypes of MS than the usual relapsing-remitting and progressive forms. Maybe we can get MS researchers and clinicians involved in ME research.

Neuro-immune would mean related to the brain's immune system. Neuro-immune as used in the ME/CFS community seems to be a buzzword with little substance behind it. We also have no idea how the metabolism changes over time, or whether the currently in some instances contradictory metabolic...

Wessely thinks he is dispelling harmful myths about illness. He is adding to the confusion with his own harmful myths.

It seems to be worse according to their metrics :D. Maybe Wessely isn't too happy about it but Sharpe and I believe someone else, maybe Moss Morris, tweeted about the lightning process. They seem to view it as further evidence supporting their position.

To avoid misunderstanding , the results are also consistent with biased reporting and no actual improvement in health. A proponent of CBT and LP would choose the other interpretation however. It's probably futile to debate with them as their theories cannot really be shown to be false. Even if...

Nice find. My thoughts are that this might not convince proponents of something like CBT or LP. It might just reinforce their belief that modifying the psychological state of patients can treat CFS. These results aren't inconsistent with it.

Uhm.. yes? It is not optimized for clinical trials though. Forget telling your disease to stop while making gestures and standing in a magical circle. These rituals and modalities are outdated. The most powerful way to change the brain is clearly to give the best score on health related...