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I have concluded that these kinds of studies increase distress and distrust because they spread misinformation. This could be avoided if the authors spent more time with patients and were willing to question some transmitted wisdom. Some psychiatrists from the UK have used the excuse of mental...

The problem seems to be that the authors don't recognize that the ideas of White, Chalder etc ideas make no sense. Also, you know what would fix all this psychological distress? Effective treatment of the illness. ;)

https://www.sciencedirect.com/science/article/abs/pii/S0022399919304672

One of the people at Workwell. I'm not sure if it was GET or just some exercise program.

I'm sorry dear authors but this is a bit hard to believe. I think it's unlikely that you succeeded where others tried for 30 years with far more resources and failed. There is a discrepancy between what this paper seems to suggest (meaningful improvement in ability to exert) and what PACE showed...

Can we see the CPET results for before and after? It has been suggested that GET leads to a decrease in fitness on the CPET and I would like to see if this was observed.

Link to the survey of clinicians and researchers on ME/CFS diagnostic criteria https://www.s4me.info/attachments/researchers-and-clinicians-survey-1-pdf.9135/ @Chris Ponting now that wider public feedback is sought on the GWAS study, I suspect you will be getting comments about the necessity to...

I think there is a risk that, just like in the eugenics movement, the importance of inherited genetic factors will be overestimated, while all the other factors will be downplayed. It would be a perfect excuse to NOT examine factors related to income like policy.

What the fuck. Psychologists like James Coyne, Sinéad Conneely, Brian Hughes that have no stake in these therapies call it pseudoscience and worse.

Finally a person that isn't afraid to say how things really are.

No doubt this is the result of successful advocacy.

Leonid Schneider is thinking what I'm thinking

@Kalliopse what a horrible program. It's no wonder it's so hard to make progress when these quacks are constantly lying and hyping their probably no better than placebo treatments.

How would one persuade a reluctant organization to start a search anyway? Maybe by telling them how bad the problem is, how long it has gone unaddressed, and how many people are affected?

Why do you think that people in relevant positions, where they could do something, aren't generally doing anything?

Supposedly this way of doing things greatly reduces the cost because there are no guards.

I heard stories about Ampligen being very effective for one person or a few, but the clinical trial results were also disappointingly weak. It would only make sense to study this further if you can predict the response.

I'm sure you could terrify parents if you told them their children could get this in high school and drop out and become disabled for the rest of their lives. Pointing to some other measures of disease impact than mortality would maybe be better because in terms of mortality it does not stand...

https://members.tortoisemedia.com/2019/12/16/country-that-closed-its-mental-health-institutions-ian-birrell/content.html

The list of projects is impressive. We continue to analyze the Severely Ill Patients Study data, which is a huge job and continues to give us new insights. We are working on publications of this data. We are continuously comparing all our diagnostic tests with each other and with Naviaux’s...