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I doubt that the Italian data is representative. Only 23% unemployed? That's got to be one of the lowest unemployment figures I've ever seen.

I fear that they are underestimating how socially isolated we patients are. And we are certainly not representative of the average patient in terms of motivation and knowledge.

I wanted to say something but it was too harsh even for my high tolerance. I suppose this might be better than nothing for some but I find it disturbing that things have reached this level. If you've got an epidemic of depression and despair, you don't need mass psychotherapy made cheaper by...

One study found "elevated levels of some blood markers for microbial translocation in ME/CFS patients" (from the gut into the blood) https://microbiomejournal.biomedcentral.com/articles/10.1186/s40168-016-0171-4 Another study found "increased bacterial translocation following exercise in ME/CFS...

Is increased intestinal permeability an important factor in the illness? I know that during a flare up of symptoms apparently triggered by food I had a greatly increased zonulin which is I think a marker of increased intestinal permeability. The gut problems could be a consequence of...

Would tissue resident immune cells show the same abnormalities, but more pronounced?

There is a bunch of graphs in the paper. I don't know how to interpret this imunology but the overall impression is that of there being little differences between patients and controls. With a large sample size, even small differences can become statistically significant. A few graphs seem to...

Merged thread - the pre-print is now available. https://www.biorxiv.org/content/10.1101/2019.12.23.887505v1 This is a pre-print that has not been peer reviewed.

Questions about the concept of catastrophization. Does catastrophization imply that the patient is complaining more than they should? If so, given that pain is subjective, how can someone determine that another person is exaggerating their pain? Or is catastrophization a behaviour that makes...

Wow what a nice surprise. That shows one should never give up.

@Woolie didn't you have some periodic fever syndrome?

And the how to deal with it part is therapy with indoctrination likely to lead to response bias in uncontrolled clinical trials that are then cited as evidence the whole thing is correct.

I think there is intentional ambiguity that serves the purpose of making their idea harder to attack.

I am posting this because I think it clearly shows that FND is just a rebranding of the old conversion disorder with a touch of the PACE trial approach. https://www.ncbi.nlm.nih.gov/pubmed/29764988 But now they're trying to show, with what appears to be poor quality studies, that this idea...

The experiment performed lacks a sick control group (it does not say they were sick so I assume they were healthy). Comparison with other patients with similar illnesses could invalidate the idea that these findings are specific for functional neurological disorders or that functional...

@borko2100 my theory is that popularity of Freud/psychonalaysis in a country correlates with the degree psychologization of illnesses like ME/CFS, with the predictable consequence of there little hope of progress.

It would be nice to have some clarity on what depression actually is.

:D I wonder how many such fads originated from ME/CFS. Dysbiosis could be quite plausibly be an exacerbating factor in the illness in some subgroup of patients.

There is a big difference between a therapist telling you that things will be OK and one that thinks their job is to cure your illness.

When I searched online about this topic, I found a similar article with the same story published in 1999 by the same author. And then another similar article with also the same story, from 1994.