Search results

It was zonulin in stool.

There is another reason to avoid lots of questionnaires: the BPS people will spin a BPS narrative out of the data if at all possible. When the study is published and genes are found, it could be a significant setback for them. Meaning they would be in a situation where need something to not...

There seem to be two competing theories: One says there is an epidemic of mental illness, depression, somatization, health anxiety, malingering, etc. The other says there are new environmental factors causing an epidemic of chronic disease.

Could exposure to yersinia cause problems later in life, with a delay of perhaps a decade? I've also always had a few lymph nodes that are palpable and hard (on one side, with the corresponding lymph node on the other side of the body being unable to be found because it's not palpable and hard...

I read about this syndrome because I'm becoming light sensitive, can't see in poor light conditions and have intrusive visual snow and disturbances. The association between light sensitivity and ME/CFS is well known, I'm wondering how many others have some of these additional symptoms? An...

By now the belief that emotions cause disease is part of popular culture so it's not surprising some patients might describe their illness in this way. More so when the cause is unknown.

I suspect it's just like with climate change and tobacco. The industry rewards scientists that produce the evidence they need and the scientists know what is expected of them and that rewards will come. Both the behavioural and insurance industries are huge. It would be surprising if they didn't...

Today there was also a short clip with this patient on TV. http://www.rai.it/dl/RaiTV/programmi/media/ContentItem-7e7d30ac-806b-4e38-9eae-c7f4c66e7ccd-tg1.html

I think there may be a difference. Countries like Germany never acknowledged the problem while countries like the UK did, to some degree, but psychologized it heavily. It may not be a coincidence that the UK has relatively organized patient organizations. If patients go mostly undiagnosed they...

Nicely written and I like that you'll write more about MUS. I think this idea exists to cover up the fact that nobody actually has a clue and that it would be too expensive to investigate in depth every patient with difficult to explain symptoms. And also because of Freud. The "complete works...

Sounds like a signalling problem.

Recently there have been several such articles in Germany. I'm happy that this topic is now getting more attention in various countries. An excerpt Link to a Google translation of the article

These approaches often include some kind of education or explanation on how symptoms supposedly arise. I think this may be a significant source of bias because it presumably involves patients being told fairly clearly what behaviour and results are expected from them. For example if patients...

It often feels like an infection but nobody can find a pathogen. Maybe something like this is the cause?

Molecular biology is specifically mentioned as possible area of research.

@Chris PontingThis may be of some interest: Yes. How about solving the problem of "medically unexplained symptoms" or ME/CFS and similar conditions in a serious way? We patients want our old productive lives back. We need good treatments for that and to get them we need to understand the...

The formatting ist lost when copying but here it is

Thanks but I'm not sufficiently interested in the topic to do this at the moment and the full paper will probably contain much more information.

Right. It could be, but where is the evidence for ME/CFS having this dysfunction of central control mechanisms at the limbic brain system? I don't believe anything like this has been shown yet. I'm no expert on neuroimaging but it's hard to believe such a thing could be unambiguously...

Some more thoughts: One of the strengths we have is that ME/CFS is a genuinely important problem that affects global society. Those who look for meaning in life, those who wish to make a real contribution to society, may find the idea of joining our movement to solve ME/CFS to be very...