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  1. Hoopoe

    Blog: A totally useless therapy for benign and malign conditions – where is the difference? - Edzard Ernst

    Without reading the blog, my first thought is that there would not be much opposition.
  2. Hoopoe

    Patient's experiences and effects of non-pharmacological treatment for ME/CFS - a scoping mixed method review - 2020 - Mengshoel et al

    What a disappointment. If EUROMENE doesn't address the causes of such a poor review I don't see much future for it to be honest. It seems to be used by CBT and LP enthusiasts to uncritically spread misleading and dubious claims.
  3. Hoopoe

    News from Scandinavia

    I liked her previous article but this one not so much. The narrative that there are two groups of people, one helped by cognitive approaches and the other not, seems to be an illusion created by flawed research practices. Even if there were such two groups, it would still be scandalous to...
  4. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The reason opposition to these studies doesn't work well is because we haven't been able to make the public understand just how fraudulent the whole research scene in this area is. It's the norm for researchers to spin their results so that they show the opposite of what they actually show...
  5. Hoopoe

    Etiology: graphic representations

    If the goal is to show an audience that there is a biological basis to the illness, then the epidemiology and selected findings like the responses to a 2-day CPET could be good.
  6. Hoopoe

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    Merged thread This was authored by Nina Muirhead. You can try it out for free. I scored 90%. https://www.studyprn.com/p/chronic-fatigue-syndrome
  7. Hoopoe

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I can do the math but the hard part is remembering what 30*b was after calculating 4*x+40. Math ability is OK, but I risk immediately forgetting the numbers I'm supposed to remember.
  8. Hoopoe

    Webcast: (Medically Unexplained) Physical Symptoms: A Scientist Practitioner Approach June 8 Trudie Chalder

    I'm curious to see how the CBT/GET ideological brigade will react to covid-19. Is their faith in CBT/GET shaken and will they try to do things differently? Or will there still be no insight, no humility, no desire to do things better and this new patient population will get the same old CBT/GET?
  9. Hoopoe

    Lightning Process - discussion thread

    I'm conflicted about this thread. It feels wrong to take LP too seriously. We might as well discuss how credible the emails from a certain nigerian prince are.
  10. Hoopoe

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's also impressive how well the people with long term covid-19 are dealing with this. They have already organized themselves in groups. The internet makes that possible. This will help them, and perhaps us as well.
  11. Hoopoe

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I view this is an opportunity to build coalitions to help solve ME/CFS. The coronavirus pandemic makes it even more clear that medical research has neglected an important health problem, that of long term symptoms after an infection. If long term covid-19 isn't exactly the same as ME/CFS, does...
  12. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    In my opinion the potential for harm to patients is large. Patients are typically financially dependent and often rely on family members. This relationship relies on trust because it's not possible to prove that someone is as disabled as they say they are. It is very toxic to suggest that...
  13. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    They fit into the model as people who didn't do it right.
  14. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    This is beginning to look like PACE. Deluded but well connected reseachers that find it easy to prevail over patients that are desperately trying to warn there are problems with what is being planned. A media campaign that misrepresents the treatment by carefully avoiding all the problematic...
  15. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    @Jonathan Edwards could you write a letter to this newspaper? I think the article is rather biased. I think it means that as I predicted, it will be a wait list control group which is totally inadequate. This means that either the people behind this are naive amateurs or there is no intention...
  16. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I think LP will be shown to have no effect on the underlying illness (if it is ever tested rigorously), although it could be quite good at putting some people into highly optimistic state of mind where they are convinced they can control the illness and live again. They will then attempt to...
  17. Hoopoe

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I noticed that when I'm mentally exhausted due to mental activity, my gait changes and I walk like an old man. It seems to be the mental exhaustion at least (maybe it's also orthostatic intolerance and sitting). Another great way to produce abnormal changes visible to observers: reaching down...
  18. Hoopoe

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I have done cognitive testing and it was within the norm but I'm 100% sure my performance has suffered. That means I think that the test I did is not suitable for identifying the problems I have. I suspect the problem could be reduced blood flow to the brain. Are there cognitive tests suitable...
  19. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I don't think I can handle this level of absurdity. Reality feels rather surreal at the moment.
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