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I also wanted to say that even if I doubt that the theory underlying FND is correct, I can accept that the existence of the FND paradigm may be doing more good than harm. I think it's important that people who are ill are recognized to be ill and diagnosed, at the very least because society...

A program developed to reduce healthcare utilization by "superutilizers" failed to show any effect on healthcare utilization. https://www.nejm.org/doi/full/10.1056/NEJMsa1906848 This may be of interest to readers here because this was a behavioural health approach that involves searching for...

Or FND is hard to write about because it's an incorrect explanation. It is equivalent to conversion disorder, which comes from Freud who used what today would be considered "recovered memory therapy" to unmask the emotional trauma he believed was causing unexplained illness. Recovered memory...

Can you explain why stress plays a larger role in FND? And why is there emphasis on stress when it is recognized that FND can appear without any particular stress? I agree. It's better to have a "working title" than nothing. But it does not seem to be a term that is neutral in terms of...

To add some more information on my point of view: An article on psychosomatics from 1945 says "the emotions are regarded as the primary cause - or as precipitating or aggravating factor in many cases of bronchial asthma, hay fever, hypertension, arthritis, heart disease, rheumatic disease...

There is hardly an illness that isn't made worse by stress but that doesn not mean it is caused by stress. Stress can kill a person with heart disease but the key factor is the existing heart disease, not the stress. Similarly, the illness onset can be stressful for a variety of reasons but...

People want to see a way forward and they don't like uncertainty and it's hard to accept that nothing can be done. A person that is committed to an idea will also not easily abandon it and people don't like admitting that they fell for a scam.

It's called Post-Treatment Lyme Disease Syndrome in the literature and there's a study here https://www.frontiersin.org/articles/10.3389/fmed.2017.00224/full?&u

It is undisputed that a portion of patients with lyme disease continue having symptoms after the infection appears to have been cleared. What is disputed is whether this is due to continued infection or something else. There are a variety of diagnostic tests that are inadequate, creating some...

They are saying that removal of adrenal glands appears to create an illness that is closer to ME/CFS than the illness created by injecting mice with compounds that the immune system interprets as bacterial and viral infection. Of course adrenal insufficiency is not ME/CFS and mice are not...

It would be good publicity if he visits Ron Davis lab and turns out to have a positive nanoneedle test.

Poor guy. The mononucleosis part is interesting. Maybe he just has ME/CFS but ended up with lyme diagnosis by a quack after other doctors failed to diagnose his ME/CFS?

Same. I just want good scientists working on the problem so that we can really understand it. If it turns out to be several illnesses that (speculating) maybe just have a particular kind of dysautonomia or mitochondrial dysfunction in common that produces PEM then I'm fine with that. I'm happy...

The FND people on twitter have so far said nothing of any substance as far as I can see. It's rather hard to say anything of substance in support of the FND paradigm because it lacks any.

Nice list of signatures. Good to see more European researchers too.

Is the request for expression of support only for people from the UK or not?

If the whole thing doesn't work well then it's good that people are leaving. A project that's built on flawed evidence would not work well in the real world and what may be happening is that CBT is finally meeting reality and the two are not getting along well.

There doesn't seem to be anything obviously wrong, although there could be some bias in the selection of topics that patients were asked to rank, as well as other kinds of more subtle bias. So I asked myself what important topic might be missing here, and I think it's disbelief. This causes...

Interesting.

I'm guessing it's not unique. It's just a signal that something is wrong.