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I agree that withholding the truth from patients that they probably have a serious and incurable illness makes it more likely that they will become frustrated with mainstream medicine and try to find an answer and cure themselves somewhere else.

Gøtzsche has not taken a position on the PACE trial, MUS, CBT/GET, ME/CFS as far as I know. Some people tried to bring this to his attention but he doesn't seem interested.

@FMMM1 I hope the EU has good scientific advisors because an uninformed person, despite having the best intentions, could come up with a plan that will do little to help or may even do more harm than good. So I would like to remind you that @Jonathan Edwards would be happy to fulfill that role.

Nicely done! Good to see this is progressing.

Perversely it might be in their interest to create dysfunction in the doctor patient relationship so that they can position themselves as solution (for the difficult patient). Given that the advice they give to doctors is consistently terrible, one wonders whether that might be occurring. This...

It's not in their self interest to propose interventions that don't involve psychology or don't require a psychologist to deliver. In my view the most effective psychosocial intervention would be to tell patients they are sick (ie. the opposite of downplaying), that nobody knows the cause and...

I don't understand how anyone can think ME is a form of hypochondria, unless they are very ignorant. The patients aren't overly concerned about having some disease, they are sick and having symptoms and suffering from substantial impairment. Believing that you have some illness will not...

But they had no evidence for the correctness of the model, and no credible evidence for efficacy of the treatment either (see PACE trial debate). What is happening here is that a story was made up to facilitate selling CBT. It's a fraud. It's no different from making up a story of how eating...

Very good paper with some interesting information: It appears that the problem is maybe not with psychiatry but with some zealots that have strong but unproven ideas on unxplained symptoms. Essentially, it is possible to fantasize about how patients make themselves worse with their thoughts...

This is maybe a bit off topic but I didn't think it deserved its own thread. Yesterday I caught myself thinking that I was feeling pretty good. I then assessed my state a little more deliberately, and I still felt sick and in pain. There had been no objective improvement in things like daily...

The device is going to be useful but I'm a bit skeptical about orthostatic intolerance being a reliable marker of ME/CFS severity. It's an important aspect but I think relying on it too much could be misleading. In my experience there are serious difficulties functioning years before meaningful...

It means they had a nonpsychiatric illness that was erroneously considered to be psychiatric.

I think it shows that people generally don't consider CBT/GET a promising treatment. Rituximab seemed to promise a cure or at least a good treatment. One infusion and you would after a few months begin to feel better and be able to do much more for a long time, maybe even several years and then...

People here seem to be worried about depression being misdiagnosed as ME/CFS when I think the other way around might be much more likely (maybe not with these authors but in general). Depression seems to be even more heterogeneous and less well defined than ME/CFS. It's not reliable point of...

Probably. However, a comparison to other illness besides psychiatric ones then wouldn't let them suggest that CFS should be viewed as somatic symptom disorder.

How exactly do these findings support the classification of CFS as psychiatric disorder? They don't. They just want CFS to remain their turf.

The German speaking countries are finally joining the movement. :) I also read that there will be a TV transmission on ME/CFS in Germany in a few days.

He also said that in his opinion it is dangerous for PWME to donate blood.

I think this is the part that stood out most

The sad truth appears to be that large portions of research done under a mental health banner, ostensibly to help patients, are junk. Patients are just being taken advantage of by professionals that seem to have agreed to collectively pretend that methodology that is with certainty known to be...