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One of the therapists, while discussing the topic with colleagues, wrings her hands and says that they could achieve even better results if the patients weren't so resistent to the therapy.

The patient enters the room and rates their SF36 score as 60. The patient is then subtly given the message that the illness is a product of their mind and that there isn't anything wrong with their body and that they shouldn't view their symptoms the way they do now. Before leaving, the...

I would like to introduce the term psychosomatic reductionism. Whatever symptoms the patient has, it can and will be "explained" as some sort of emotional or thinking problem. If any symptom really doesn't fit it's just ignored.

I had to laugh when I read this. It sounds like they are observing that attention, beliefs and expectations influence how people report their symptoms and they interpret that as sign the illness is mysteriously arising from the mind.

The author put effort into this but I think they could have done a much better job explaining the problems with claims of exercise therapy being effective.

I think you misunderstand Simon. His goal is to distract from the horrible situation patients are in (which he is partially responsible for) and to cultivate his public image. He would gain nothing from dialogue.

This study here Time course of exercise induced alterations in daily activity in chronic fatigue syndrome https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1280928/

Absence of standardization also means more freedom which means more opportunities to make choices that make some treatment look better than it is. The bias may already be showing with the decision to make a review of exercise therapy. A narrow scope of only looking at exercise therapy and...

That doesn't inspire confidence in the next review of exercise therapy for ME/CFS. Even if well meaning people are involved, in the end I think Cochrane will maintain control and ensure that nonpatient interests aren't harmed too much. Does anyone think Cochrane will admit that unblinded...

Can anyone explain what kind of extracellular signals would induce mitochondrial fission? Also what does it mean that cells are doing a lot of mitochondrial fission, does it occur in response to an impairment in energy production?

It doesn't seem much different from a ordinary flu. It seems to be slower to get going and disappear. Also the instructions by the health authorities say that the signal to act would be having a flu with respiratory problems. Also I'm double sick and don't feel like doing anything but wait it...

In my family it is now clear that we are affected by some flu. We don't have fever though, just feel crappy. I have very bad headache. Could be the coronavirus.

Note that this probably includes studies where participants have to meet one of or all of several diagnostic criteria. I would interpret this as a lack of confidence in any particular diagnostic criteria, rather than confidence in the ICC. I looked at the first four studies and three of them...

Hopefully he will finally crack the puzzle. That would be amazing. It's a signalling problem. Whether the signal is right or erroneous remains to be seen. Right would mean that somewhere there are infected cells sending out these signals to contain the infection. Erroneous would mean that some...

Today I was in the hospital again to retrieve some diagnostic test results. This time right after entering the building, there was a checkpoint with a table and what looked like a nurse and a man from security. On the table were a few boxes and some object I didn't get a good look at. I think in...

@Colleen Steckel If a ME diagnosis helps you access useful treatment for some aspect of your illness, then getting that problem diagnosed would make it even easier to access treatment. For example, if a ME diagnosis helps you access medication used to treat immune deficiencies then getting the...

For some of us the name and diagnostic code has no influence on care or insurance coverage. That insurance will pay for some treatment for ME doesn't seem to be based on a sensible assessment of evidence to me, as we have no understanding of the mechanism and there isn't any treatment truly...

Nothing wrong with wanting to dispel a label because it is false. The "doctor shopping" in my experience is indeed the ordinary reaction to not getting help.

For example, I have had an itchy, twitching and runny nose in the last days, and noticed an unusual muscular weakness. I do a few pull ups every day, but barely managed to do a single one instead of being able to do three in a row like usual. Today that had improved. I'm not 100% sure if that...

I'm not worried (about myself). I think ME/CFS makes me less susceptible to infections. It's a bit hard to distinguish between mild infection and ME/CFS fluctuations but infections when they are clearly present seem to produce intense symptoms and fever less often than for other people...