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Just to underline the absurdity.. Pair this with the repeated grip strength testing, and imagine the title: “ME/CFS is associated with better risk/reward navigation.”

Verity&Science1, who describe themselves with: “I am interested in medical and allied approaches which assist people to recover from traditionally hard to treat conditions such as ME/CFS.” Eerily familiar.. The wording of the added paragraphs on the BBC podcast lacks neutrality big time, and...

Very much agree! I can't get past the fact that they seem unwilling to take in that a lot of patients who are on the milder side of the scale have little problem exerting themselves on a good day. Both anecdotally and from surveys, the altered "subconscious" effort preference is not a...

Is this the same Toby Young previously writing for Spiked and standing alongside Living Marxism in heavily underplaying the genocide on Bosnians in the early nineties? In that case I’ll bet you Monbiot is already caught up in researching!

Just to make it clear, from watching the man heading this team debating LC in various news channels: he is well up to date at this point in time. Publications will catch up. He takes the problem very serious, and recognizes both the burden on patients and society of not tackling LC (and ME)...

All I see is plausible deniability..

Sorry, should have provided some more context. She is a patient advocate for Long Covid patients. She’s aligned with the Norwegian ME association (ME foreningen) for all practical purposes. So warning against LP and it’s role in the Norwegian healthcare system.

This might be of interest to you: Added google translate: “Super exciting meeting with the BBC today. They wanted to know more about the different country Norway and the Norwegian health authorities' connection to alternative treatment for #LongCovid. We had a lot to say about networks...

I get the idea that if you are more ‘resilient’ you are in a better position (statistically) to make better choices for yourself. This leaves some leeway for the causation they imply, but this very construct then has to assume some equality of options to choose from for all. So it implodes. The...

Wait, what? I will assume this has been mentioned before but they state that: “We also assessed changes across blocks with a two-way ANOVA (2 groups × 4 blocks), which showed that blood oxygen level dependent (BOLD) signal of PI-ME/CFS participants decreased across blocks bilaterally in...

Yes! For them to conclude like they do, risk has to be viewed as a constant and solely tied to the actual probability of getting the reward. It would have made just as much sense to assume that the two groups will seek to take the same risk, and that the difference in what the authors call...

Rob Wüst pointed out on Twitter earlier (with regards to his much appreciated publication in January) that he had been testing several former athletes with long-covid in his lab. He wrote something along the lines of that they showed the same abnormalities post exercise, even though their...

Is this really a way to do it properly? If the presumption is that they are probing the same underlying feature, would the number of tries not have to be factored in to the probability? Or is medicine just exempt the otherwise generally accepted methods of statistics? I actually can't get my...

Is this doable? The same blood swap experiments, but an array of samples, sorting and swapping according to mass (or size)? I mean, it’s a too obvious approach not to have already been considered, isn’t it?

Also, the nature of the changes made! Outcome swapping, altering thresholds, concealment of data that does not fit with the hypothesis. Every tweak made the results look better. That’s about as close as you get to revealing a motive without a confession.

Good luck to Carson if his last hope for him not to be absolutely wrong is DOMS… I would love the sweet feeling of DOMS instead of PEM, not least being able to exercise in a way that would provoke DOMS.

Co-author Marte Jürgensen claims she recovered from ME/CFS through the Lightning Process, and is/was also affiliated with Recovery Norway (vice president). Makes me question how they went from the initial 120 patients screened for eligibility down to 83 as well. I believe the protocol stated...

Interesting clustering there indeed! Makes me think about altered metabolism, as in a shift in equilibrium at some level. Looks like two different states, with the eternal caveat of ‘needs to be reproduced in a larger dataset’.

It's kind of missleading to call it prospective. You cannot obtain reliable baseline data for someone who is already sick, what they have measured might as well be correlated to the severity of the infection. Looking at table 3 in the paper, both use of anti-inflammatory drugs and physical...