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Thank you @adambeyoncelowe! Is this meant by "changes in immune system activity"? I wonder...In my case, the thymus was found to be under-active compared to other women of my age...but I wonder how you could measure immune system activity via PET. Is it relevant that the right side was found to...

Thank you @strategist! I am pretty exhausted today, too, and I have to check the files (other device). The company who did the analysis was Dante Labs.

This was the idea. But, I have tried one online program. The problem lies in the formatting of the files or their content. I haven't tried several providers/programs and I think, due to file problem, it won't work. Ok, so I should try converting the files. And then try another program. But if...

Hi all! I had a genome analysis done. My raw data was supplied as cvs and xlsx files. Has anybody knowledge about how to interpret these results? Unfortunately, the data can't be uploaded to providers like promethease due to formatting problems (this can't be changed). Or has anybody an idea...

What changes do PET scans reveal? A brief summary of Komaroff's Webinar "Hot Areas in ME/CFS Research". Thanks to the author!

Judges...

For me, how fast the muscles burn or how fast they feel "drained" is a measure of whether I have a good day or a bad one (PEM).

They do? I never had the impression. But I agree, if they do, this is difficult. I understood it such that the 2-day CPET shows something is going on in ME - as does the pyruvate dehydrogenase paper - and that exercise is not beneficiary.

Very good points in my view. I don't think they are so far-fetched. That's not my experience. I often feel like a pain in the ass to the doctor à la "Why do you have to bother me with your trivialities; gosh, I need to get rid of her fast. Prescribe something, tell her how you empathize, do...

I don't think so. I think most of them don't care.

I can totally relate to this. The "funny" thing is - even if you've made it to a specialist consultation for neuromuscular diseases (pretty rare in itself), and even if your symptoms sound very similar to a mito disease you won't be checked. At least that's what happened to me and I don't think...

Shouldn't you have the according thoughts and feelings then? I still do light training. I know I don't feel great during and after it. Still, I have a passion for activity (training), and I am convinced activity (exercise...) is important - if you're healthy. I know that with ME I'm probably...

I agree @Graham. And now I understand. Thank you. :) But officials, authorities, judges etc. don't see it that way. And I think about finding arguments, maybe even proofs, that what the psychs say is nonsense. My experience was it is enough that a psychiatrist, for instance, says you have that...

Dear @Graham, I need to admit that I don't understand entirely what your meaning is - I understand the part (and agree) that psych-people don't seem to use logic that much, which leads to inconsistent statements and theories, and that the psychs got all the money and, again, failed to prove...

I have asked the German Ministry of Health about this. I hope I'll get a reply. I am absolutely shocked, and I agree that this is a form of sexual abuse. Sometimes I can't believe what perverse ideas human beings can have.

I find that very interesting. Thanks @Helen for pointing to the publication and to the others for the discussion. I am curious about more.

I am not so sure if it's about "anti-vacciners" itself. I share @ukxmrv's thoughts. The idea behind vaccination is good, but probably its implementation must be checked and/or reconsidered. If I remember correctly one point of critique were adjuvants. It seems these can lead to an unexpectedly...

With "multiple ones" getting vaccined with several different germs was meant. If there are options to minimize the danger of worsening I'd choose them. It is possible you have to pay for the vaccine yourself though...Still I would try and not gamble. Thank you @Woolie! I really hope I will...

I'd call it severe if it is louder than your doorbell. It sounds terrible. I am so glad that you manage it! (Gives hope, too, in case if it gets worse.)

I was told by my immunologist, vaccine alright if I have stabilized, and then a vaccine without adjuvants and no living parts (sorry, english). No multiple vaccination.