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  1. Inara

    Interview with neuroscientist Michael VanElzakker: Vagus Nerve, ME/CFS, latent infection and more

    I may be the exception here, but I am not so fascinated or happy by what he's saying although I am thankful for his work and enthusiasm. It's just a feeling. E.g. he says somatoform illnesses are real - where's the proof for that? If it's real, i.e. part of our reality, there should be a...
  2. Inara

    Open (MA, USA) “Brain Scan Study [PET-MR] of ME/CFS, 2023, VanElzakker

    Thank you, @Jonathan Edwards, that was valuable information for me. Again, I am astonished by the lack of knowledge of many doctors. Nobody understood the PET results (even though the radiologist had written a report), not even the neurologist. Thus, the results were called worthless (and...
  3. Inara

    Menon - Mitochondrial Modifying Nutrients in Treating Chronic Fatigue Syndrome: A 16-week Open-Label Pilot Study

    Thank you, @Holinger, also from me. Interesting to read about your experience.
  4. Inara

    ‘Healthy Privilege’ – when you just can’t imagine being sick

    I guess many people don't know how ME is - or how being sick is. Before ME, I was convinced that exercise always is good; now I make a different experience. And although I still think exercise/moving around is essential for humans, I now know there are exceptions. But it's very common: If one...
  5. Inara

    Glutamine, Glutamate & Glutathione

    I had (and probably still have) low stomach acid for a long time, though it's better for a few weeks now. It's a big problem. I don't know how common it is. The symptoms of low and high stomach acid are in many points similar (just my experience) so that most would maybe say they have too much...
  6. Inara

    Glutamine, Glutamate & Glutathione

    If I may add - and hopefully correctly, since I'm not an expert - you als need Chloride for HCl (stomach acid) and, if my searches were correct, Vitamin B6.
  7. Inara

    Glutamine, Glutamate & Glutathione

    Without details.. :D it is possible that whole protein passes the gut to the outside.
  8. Inara

    Non-ME harmful/incorrect psychological/psychiatric theories and treatments

    Well, unfortunately, what Richard Ofshe says in the Sally Show hasn't made it to today. There's still the strong belief of "repressed memories" and that childhood "traumata" (even those that cannot be remembered) cause illnesses of the body.
  9. Inara

    Non-ME harmful/incorrect psychological/psychiatric theories and treatments

    This is all terrible! :emoji_astonished: I wish I could say "they'll all pay", but - did those responsible for the Inquisition pay? Or others who did terrible things? Mostly no. :(
  10. Inara

    Who is Simon Wessely?

    I suppose the story of Gerd Postel is known? He was a postman who faked certificates and became a deputy in psychiatry, giving lots of expert opinions for court and doing talks before other experts of psychiatry. His cover blew because of his certificates, not because of his "lacking" knowledge...
  11. Inara

    Exercise-induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects, 2017, Baraniuk

    What happened with IL-6? Did the BPS people invent a fairytale about how the psyche or an underlying conflict influences IL-6?
  12. Inara

    Exercise-induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects, 2017, Baraniuk

    Thanks @Valentijn and @Mithriel. The knighthood is political, my opinion. It's not that I view it as unlikely that he may have worked for the Pentagon, too, it's that I like substance. Your replies give me an idea. @duncan, how can you link the ME/GWI study to psycho statements? I don't see...
  13. Inara

    Families with multiple members with ME/CFS wanted for Moreau study - worldwide

    Shall I write him and ask to clarify?
  14. Inara

    Exercise-induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects, 2017, Baraniuk

    What's the aim of this document? It's really a lot. Do you have some proofs/hints that Mr. Wessely worked/works for Pentagon?
  15. Inara

    Families with multiple members with ME/CFS wanted for Moreau study - worldwide

    @Sasha, did I understand him correctly, do you think?
  16. Inara

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    This one is good: “I now go to Iraq and Afghanistan, where I feel a lot safer” (Prof. Wessely). Indeed! I hope no Iraqi or Afghan was reading that. I suggest he really visits these places (I mean the relevant places) before saying such a thing, even if it's sarcasm. The article is terrible...
  17. Inara

    Families with multiple members with ME/CFS wanted for Moreau study - worldwide

    @Sasha I meant "many generation" families, sorry for this misunderstanding. You are right, they don't have to be big. I understood that he is interested in whether and how ME might be inherited, e.g. from parents to children, to their children and so on.
  18. Inara

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    Thanks, @Trish, after reading @Luther Blissett's link again I got this impression, too. Too sad such things are often connected with Marx. You can't just pick one thing, make an ideology about it and then say "Marx" - oh, this principle reminds me of something we are discussing in this thread :)
  19. Inara

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    I fear that feeling won't go away, although it's better we're on p.4 now, leaving those pictures on p.3 behind.
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