Search results

  1. Inara

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    I totally agree with you, @Invisible Woman, and let me say that you and we all here rise hope :) I agree. I once had the idea to determine estimations of costs for ME patients and compare it with cancer or MS e.g.. I'd say cancer is more expensive. It's always said costs are so high - truly? I...
  2. Inara

    Acute and chronic sinusitis

    I have chronic sinusitis, too, for 4 years now I guess. I was prescribed cortisone for some weeks, which helps to get the nose free, but the sinusitis is still there. Then I was advised to do an operation which I rejected (others who had it done reported the sinusitis came back after approx. 2...
  3. Inara

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Changes can be made, absolutely. But not by few (unless they're rich). In the 80s (or starting in the 60s) the mentality was different. People were outraged; there even were some forms of revolts. (A revolt has not to be violent in order to be successful.) That's, in my opinion, a problem, also...
  4. Inara

    Article: ‘Biopsychosocial’ basis for benefit cuts is ‘cavalier, unevidenced and misleading’

    Very good article. Sure. A wide range of BPS papers. (Emphasize is mine.) That's what I observed often, too: I fear the authors' paper will go unheeded. The BPS model is great for saving money.
  5. Inara

    Researcher Interactions Science for ME Q&A with Dr Montoya, 16th January 2018 question collection thread

    Some say the immune system is a little bit like a chaotic system, i.e. if you look at its function at one point in time and then on another, it might be completely different and it might not be forecast in which way. Assuming the immune system is 'chaotic': If the immune system plays a role in...
  6. Inara

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    A lot, as we know from history and present. As always I can only speak for the country I live in: people here are very pro psychological. Even in chit-chats, psychological matters are spoken about as about the weather. But behold, "psychological illness" is something disgusting, so you only...
  7. Inara

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    How can you prove something is "psychological"? First problem: How is "psyche" defined? Does there exist a unique definition of "psyche"? Does "psyche" define something from nature (e.g. some object, some physical/biological...entity), or is it something philosophical, normative, spiritual...
  8. Inara

    Which autoantibodies would you test for?

    @Jonathan Edwards I really do think you are the exception :) I never met a doctor who acted and/or treated prospectively. Findings were only discredited as "meaningless"; connections are never looked for or understood. If you can't understand the problem, you can't solve it (unless you're...
  9. Inara

    Exercise physiology

    That's something I can confirm subjectively. My muscles burn very fast, even with the slightest usage (e.g. brushing hair). When I was ok and doing my training, of course I had muscle burning. You want to get into this area regularly in order to improve your capacity. For this a certain amount...
  10. Inara

    Guideline "Tiredness" by DEGAM

    You are right. It cannot be denied that a certain German past still has major bad influences, amongst others in psychiatry. Very popular: work "therapy". According the Ärztekammer Nordrhein I understand there was a certain success in the past, by arguing on a scientific basis. There was some...
  11. Inara

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    UNUM is an insurance company? And what is ATOS?
  12. Inara

    Guideline "Tiredness" by DEGAM

    Well, I hope that if things change in the UK, Germany must follow. BUT I thought that with respect to the US, too, and nothing changed. But I think it could be worth a try to write a letter, in the best case a scientific one with analyses, citing all the papers around the PACE and how the US...
  13. Inara

    CDC gets list of forbidden words

    Why not stop talking and writing completely...
  14. Inara

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    I think that's definitely the case, at least in Germany. Insurance companies (occupational disability insurance) exclude payments in case of psychological causes. There are connections between medical associations (certain members) and insurance companies (I saw documents but didn't save them...
  15. Inara

    Guideline "Tiredness" by DEGAM

    Here is the complete version: http://www.awmf.org/uploads/tx_szleitlinien/053-002l_S3_Muedigkeit_2011-abgelaufen.pdf What is also said: P. 32: "CFS can not be differentiated from other diseases or from a healthy 'normal state' by a defined pathological process..." P. 33: diagnostics that are...
  16. Inara

    Guideline "Tiredness" by DEGAM

    DEGAM is the "German Society for General Practice and Family Medicine". In the past, DEGAM has published a guideline about "tiredness". Patients and some doctors took up their voice and wrote to Degam about their contents about CFS. There was some anger due to an ME patient organisation's...
  17. Inara

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    I somewhere read NHS was part of the funding, too. Sorry for this misinformation. Edit: But NHS was part of the trial in other ways?
Back
Top Bottom