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Thanks @ukxmrv. What does that mean, "infamous Wichita cohort"? Edit: The authors don't sound German. The statement suggested German geneticists and microbiologists made publications.

That was very strange to me. Does anybody know the publications and can link? It sounded like a direct contradiction to other findings. Furthermore, it reminded me of Prof. Stark's theory about an overactive amygdala being the cause, leading to high cortisol levels and thus to chronic stress...

Yep. :) it makes it difficult, but it cannot be changed. There might be the risk of being called 'militant', which is mixed up with determination, but I actually don't care. I am just so happy about this discussion here; at least for me a premiere.

@Sly Saint, I don't exactly understand your idea. Sorry.

I've had two examples in my circle of acquaintances with chest pain, one was dismissed as "psychological" from the beginning and probably would have died if she hadn't insisted on a check-up; the second nearly ended up in the "psycho corner" after some checks came back normal, but since it...

What always surprises me: Where comes "anxiety" from? How many people with ME have real problems with anxiety? Edit: And by the way, no proofs for what they're saying about MUS, just claims presented as reality.

@Lilpink, would you give the link when finished?

I wondered, while reading, if two different symptoms are mixed together: fast fatiguability (muscle burning, weakness etc.) and PEM. Or am I mixing things?

What is MRC?

That's my impression, too. Thanks for writing about your experience. When can you leave that place?

I don't know if this is off-topic, but the question occurred when reading. Is there a possibility to show the low-quality of most of the psychological papers, e.g. about ME (but I guess it's low-quality in other areas except propaganda, too) in one go? I.e. not analyzing one after the other, but...

@Joh, maybe @YaS meant me? Because I don't want youtube, google etc. Accounts?

Here's a quote from Valerie Elliot Smith's site which @Joh linked - by the way thanks! It's very interesting! https://valerieeliotsmith.com/2017/02/20/pause-review-reflect-towards-a-bigger-picture-revised-version/ @YaS Thanks for your interesting post and welcome to the forum! Nice to have...

I'd say you cannot. It's like the question after the existence of unicorns: You cannot prove they exist, and you cannot prove they don't exist. This entire problem has the foundation in the psyche itself - depending on its definition - and the misconception about what psychology/psychiatry is...

Yes, that was curious! And Mr. Wessely recommends drinking. (My interpretation of his words; it was maybe not his meaning.)

Highly interested.

Has anybody of you experiences with taking oxygen?

Do you know that person? Would you say it's reasonable/helpful to invite him to s4me? Yes, I know. I did this, too. But after trying lots of things - amygdala retraining excluded; even when I was a "believer" that sounded...too strange - I decided only to try things that have a factual basis...

Ohhhh, poor fellows, I feel soooo sorry :D Again, one must never expect respectful treatment after highly disrespectful behavior. Very weird... By the way, there's absolutely no problem that different groups sent similar content, quite to the contrary. Shows some organisation. That's how it...

Thank you, @TiredSam, very interesting and helpful. Would you say those people would get active, i.e. do some advocacy? If some people suggest amygdala retraining, do they believe ME is psychosomatic? Thanks for the link, wanted to ask for it :) Edit: Ah, I've already read your blog in the past!