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  1. Inara

    New German guideline for ME published today

    No, they don't. I would contact them and ask, but I'm a member. I don't want future problems. Maybe there's someone else who would be willing to do it.
  2. Inara

    New German guideline for ME published today

    And here is what a Swiss insurer writes: https://www.css.ch/de/home/privatpersonen/medizinische_beratung/medicine20/gesundheitslexikon/c/chronische_muedigkeit_cfs.html
  3. Inara

    New German guideline for ME published today

    Thank you @Esther12!
  4. Inara

    New German guideline for ME published today

    Here is what the TK (a German health insurer) says about treating "CFS":
  5. Inara

    2 day CPET testing for anaerobic threshold in ME/CFS. Share videos, papers, your experience, discuss.

    That was the problem in my case, although I confess the problem was me sending a paper with 2 day CPET. They refused to make these tests. Does anybody know of a possibility in Germany? If it helps with lawsuits, I could really use it.
  6. Inara

    New German guideline for ME published today

    Thank you, @Esther12! Edit: What is the problem with that study?
  7. Inara

    New German guideline for ME published today

    I understood that. I was referencing to this study. To me, it seems far fetched to make a correlation between childhood trauma abd a certain DNA's changes without further research. There are hundreds of other possibilities why there are DNA changes.
  8. Inara

    King's Health Partners, "Medically Unexplained Symptoms A Practical Guide", March 2017

    @Lilpink, I always value your advocates' analyses. Lots of thanks!
  9. Inara

    Prof. Mella - Autoimmunity and metabolism in ME/CFS (lecture)

    Yes, I don't speak Norwegian. There are English subtitles.
  10. Inara

    Prof. Mella - Autoimmunity and metabolism in ME/CFS (lecture)

    Mella said in the video the findings were positive so far.
  11. Inara

    Prof. Mella - Autoimmunity and metabolism in ME/CFS (lecture)

    This is a highly interesting video! He talks about so much different topics: Metabolics findings (Naviaux, pyruvate kinase, high lactate levels, also in the brain), the study where they combined grown muscle cells and blood by ME people, vascular stuff, orthostatic intolerance and many more.
  12. Inara

    New German guideline for ME published today

    I don't get it. If the methylation differences were small, how can you say that And how can you prove without a doubt that (childhood) trauma are the cause of DNA methylation?
  13. Inara

    New German guideline for ME published today

    That reminded me of Prof. Stark's statements.
  14. Inara

    Psychological Stress and Mitochondria: A Systematic Review Picard, Martin PhD; McEwen, Bruce S. PhD

    Thank you, @Valentijn, for your great analysis on this topic! Very helpful.
  15. Inara

    Analysis of five hallmark studies from the Netherlands, 2018, Twisk and Corsius

    But the reasons for drop-out in the control and intervention group are most probably different.
  16. Inara

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    I would never accept that a doctor/a GP is allowed to have short lists of my medical issues. Easily misused.
  17. Inara

    Nature: A reboot for chronic fatigue syndrome research

    Does this suffice for scientists as proof for low-quality? (I don't mean psychologists; they obviously love their publications and view them as scientific.)
  18. Inara

    Nature: A reboot for chronic fatigue syndrome research

    I don't accept any "psychological diagnosis" - I don't believe in its existence - and I don't want to be put under a 'community umbrella' that, in principle, accepts the possibility of ME 'being in the head'. I am totally fine if someone personally has another opinion. I am also fine with most...
  19. Inara

    New German guideline for ME published today

    Yes, that's how it sounded, given the context.
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