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Stuttgart would also be fine with me. I think I could be there personally for 1 hour or so... Tübingen's Altstadt is pretty tight :) there is a place in front of a bigger church where such actions take place, and they are always seen by bypassers. You can't look away. If you want to walk away...

Wouldn't dare say it - but what about the small city I live in, Tübingen? It's one of the medicine centers with a Uniklinikum, and pretty conservative. I contacted a left politician in the past, and she reacted - and positive :) she maybe could be brought into this; I would have to meet with her...

@arewenearlythereyet, I guess you explained why I get sore muscles if I do "too much". This is just my personal experience, and I can't explain it in detail on a metabolic level. I don't train my muscles till exhaustion anymore. That will most certainly lead to terrible muscle sores...

And welcome to you, @mari_gold!

Hi @Miri, welcome to the forum! Nice to have you here! I am not on Facebook, but there are many others who are. I would be very happy if we could keep the discussion here, but it's probably only me. So do as is best.

Where I definitely need help is with courage :) I lack the courage to make my illness public, e.g. to neighbors and others.

I saved it, and if I remember correctly, @Philipp linked to an archived version.

Would this include immunoglobulins?

Could it be that something calls for adrenaline, which is poured out, and then the adrenaline causes the nausea and dizziness and so on because the body reacts badly to adrenaline? I.e. there is some cross-reaction.

These are interesting thoughts indeed...had to think how it is in my case. I would have said the high pulse comes first, then dizziness, nausea and the rest, but on a second thought I admit there is a certain possibility I might want to remember it that way because this is my preferred...

Which is my experience. I really drink enough and wouldn't say I have a salt problem. Plus, I have the same drinking and eating behavior as one 1 year ago, where I already had ME but not this "standing problem".

First, thanks for your thoughts about this topic. What I experience is the following: Pulse rises, and I hear my heartbeat very clearly; blood pressure falls slightly (around 10-15 units max? Don't remember clearly). I feel dizzy, nauseous, I cannot think. It increases with standing duration...

I, on the other hand, had for ca. 2 years no orthostatic problems; I had a low pulse (45bpm during night and blood pressure 90/60). It started ~4 months ago. I conclude it's something new, something that developed. I don't know what to do with it and feel uncertain. Thanks for this discussion.

Hi @Joh, let me know where I can help. I cannot travel to Berlin, though.

I have the same question, @Mij. I don't know either. Wondered about it lots of times...

Maybe one thought about the marathon athlete he is talking about starting at 25:28: As I understood it, her aim was to start with basic aerobic training in order to slowly increase her fitness level (e.g. running bigger distances). It contains increasing workload over time and accepting pain...

@Mij, that's a highly interesting talk by vanNess!

No, mine not. But the archiving system my husband is building up is supposed to save more data, e.g. that about the Trojan findings. Edit: Just wanted to say that my impression was that documentation of programs is not a favorite, leading to the problem that new people don't understand it properly.

My husband works in the academic data archiving area. Bad documentation is a huge problem. This also was an issue when I was doing my PhD. I tried to document and comment everything, but that was not common. Not sure, though, if an outstander would have understood it. To be fair I was not a...

Would anyone be willing to provide some background information on what is going on? Sounds interesting, but I don't understand it entirely.