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And what about those people with ME who don't show autoimmunity (at least with the given technology)? Those wouldn't fit into this model, right?

What is with all the patients that present with PEM? I mean, if you don't know what you have you don't go to the doctor and say "I have CFS" or "I have chronic fatigue" (unless of course you feel chronically fatigued - whatever fstigue is, I don't undrrstand it entirely). You say what your...

Does anybody know if it's enough to send my experience to Myhill alone? Does she collect all letters? If I contact Sir Stephenson of GMC directly - as she asks - I surely have to take into account some bureaucratical issues, no? I feel a bit uncomfortable with that.

I think without unison - at least to the external world - it won't work. That's just was history and the present show. Every big agenda worked or works due to unison. Internally, discussion, fights, different opinions etc. are ok as long as they don't lead to (public) split-ups. I agree that a...

Cool :)

I fear that's not uncommon. I was told that the stuation in UK was better than in Germany (and in some aspects it is) - which surprised me because I already had heard about Wessely&Co - and when I first heard about ME clinics I was like "Ohhhh, I want that too". But here I learned what these...

Well, sad for me, but it's ok.

That's what I thought too. Maybe Carol Monaghan should be informed? She possibly doesn't know because I really think she wants to help. Or doesn't she?!

You really are a star, @Andy! :)

Thanks guys, awesome!

Thanks @ukxmrv! Up til now it doesn't sound so bad!

@Kalliope, I had the same problem. I would be glad and thankful for a brief summary by someone.

Why is that? How can I distinguish good from bad quality?

Maybe we could start a call on s4me for used shoes?

Ok, but this sounds concrete. Can we vote? Shall we fix Berlin at this point? Of course, other cities can join, too, but we need at least one person who can be there for some hours. Do we have such a person for Tübingen or Düsseldorf or...? Now, how to proceed with Berlin? Can we create a...

Thanks @ladycatlover! :angel:

Yes, I mean that livestream.

Thanks for clarifying, @Joh and @Miri. So, let me summarize: Berlin is the choice because there is someone who's healthy and will attend and the DG will be able to attend (but not to organize). I have not the capability to be present in Berlin or Tübingen (there only for an hour or so), i.e...

Can anybody post again the link where the debate can be viewed? I thought I had it opened.