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I find the statement by Prof. Stark highly problematic. But it doesn't surprise me. Still, a little shocking what is deemed an "expert opinion". (Please note I only use what is written for my recension. I don't know him personally.) It is trivial indeed that not using muscles leads to muscle...

That sounds very promising. So I can hope to get an answer. :) Thank you!

Thank you, @Jo Best. These are good hints. I did contact Mr. Fluge (no reply yet) but I shall consider asking Prof. Tronstad, too.

Dear @Gingergrrl, I wrote Mr. Afrin my question and he answered. So I am not a patient of his, just interested in the research. I asked about the role of calcium channels in MCAS, in particular about IP3R3, since it seems to play a role in autophagy and apoptosis. I understood Molderings' et al...

Of course @MErmaid, you're right :(

[I don't know whether this is the right subforum to post...if not may I kindly ask to move it? Moderator note: thread moved] I was pointed to a mutation in the ITPR3 gene. This gene codes for a protein consisting of a calcium channel and a so-called Inositol 1,4,5-triphosphate receptor of...

But how to find a real specialist?

Sorry, I read that later - my post seems misplaced. Those terrible things make me so sad and angry. There seems to be no love at all in many doctors. This lack of empathy is shocking. It's not only criminal, it's sick.

It's maybe trivial, but isn't Open Office an option? I totally understand your reasons against Microsoft.

That's an interesting article, thank you @Kalliope.

Yes, it was replaced. I don't know the specifics though. To me, as a person who had low Igg3, I wouldn't want Igg that low. Even with "only" low Igg3 I had one infection after the other. My take-away was: If you have auto-immune issues, immunoadsorption might be a good try. But it is EXPENSIVE.

The thing is the actometers which are used measure any movement that's strong enough to trigger a count, i.e. brushing the hair can be around 100 steps, showering even more and so on. The actometers are carried the entire day and night, not only for walking. Considering all that I'd say 5000...

@YaS, I think it's possible both ways - that MCAS is a consequence of ME and that ME might follow MCAS. I sometimes think MCAS was first in my case, but I cannot know for sure. @Seven, I think it's realistic to hypothesize a connection between Fatigatio and the German BPS group. There was a...

Ah, Klasing, that sounds a bell :) Yes, I understood. Thank you. :) Still, she should be careful with throwing stuff like that around.

There is a youtube video by Afrin where he says that MCAS might be a co-disease in ME (i.e. that some people with ME might have MCAS, too). I didn't have the impression he states that MCAS is ME (or that ME is MCAS). There also was the question if hypermobile EDS and MCAS might be somehow...

I would like to know those paragraphs and why something like that should be illegal. If as a stranger I come across some documents, of course I share them and I'm allowed to share them if the author/s is identified and if there's no other prohibition statement (copyright or whatever). My...

Yes, I mentioned that several times. "Treatment" recommendations are CBT and GET.

@Effi, I pretty often feel there could be something else (I read about some people who were misdiagnosed), although I sometimes think it's only hope because this illness really is a curse.

Thanks. That's what I meant by "given the technology" - sometimes language makes it difficult. :)

Some people's behavior really is...unpleasant, @Invisible Woman. So this person feels tired. Ok. Still, others present with other symptoms. Before my health got much worse I felt tired, partly it was a heavy tiredness. But I had no problems with it. I worked, I exercised, I went to...