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That's what strikes me, often, too. But it seems, in my experience, many doctors don't seem to be very keen on problem solving, or being a detective and so... To me, this is quite vitalizing. But people are different.

The picture ("Venn diagram") he shows is actually what I meant in another thread where I thought about sets and subsets. My claim was that ME is not a subset of CFS but that ME and CFS may have an intersection set. I didn't include SEID though. I wonder if we can really answer the question...

Thank you, @MeSci, that's something I thought very often, too. Besides, if there are "militant" actions to fight for animals - or "Greenpeace" actions - I personally think it's ok.

This is great! :)

@Sasha, you were fast! :)

Superb, @Luther Blissett. Revolts, revolutions, up-standings always had outrage as foundation. Of course, it also depended on availability of weapons and money to be successful, but not always (see Ghandi and Martin Luther King). Let's look at history and how most human beings work. Outrage was...

@Stewart Your post explained to me why some people feel that no aggression should be displayed publicly since it can and was misused to mispresent people with ME. This is an important fact. To me, the solution is not to satisfy what the "anti-ME" people want to achieve with this (and what...

Edit: Sorry, read moderator's comment too late.

I think both is needed. An angry crowd, and then, when it comes to negotiations, the emotionless, reasonable, scientific individual. That's also with ACT UP: First, they had their "action" - which were pretty wild, but effective because of that - and then, when officials at last showed interest...

Me too :) There is also something called Arbeitstherapie ("work therapy", i.e. increasing physical and mental well-being by working) - this is an official "therapy" in Germany. Of course, you don't get paid for the "work". Strictly, Arbeitstherapie goes back to the Euthanasia program by the...

@Graham, I have nearly no problems with walking on even ground, but uphill and stairs are really hard. I think we are all a bit different, and I don't know how much can be deduced from this concerning severity.

In general, going stairs is hard for me. If I can rest in between and go slow, it should be ok. But I think, after Graham's posts, the experiment isn't needed anymore. Or is it? Edit: I've just seen the above posts. So I retreat the offer :)

When should the resting heart rate be measured? E.g. over the day, my resting heart rate is relatively high, at night and in the morning it's around 50. How long should the test last? 120s? Does it include going downstairs or only upstairs? Short: I would try it, but I wouldn't do maximum...

Thanks @Sly Saint!

Everyone has another training status. Depending on it - and ME severity - I'd say training is possible or impossible with ME. Kick-boxing is really a very strenuous sports, I'd say a bit more strenuous than boxing. The training is pretty hard. If you are a professional athlete, competing with...

I received the same message, @TigerLilea. The good message is they seem to have gotten my kit. The bad is we will need patience.

I am a bit critical. I can't say something about quality. Section "Relation With Potential Cause(s) of CFS": (CDR = cell danger response)

I don't know of so many very rich people with ME. But you are right in principle. I think if there were very rich people with ME, we probably had some kind of advovacy from them, like with HIV when VIPs and other "important" persons were affected and they realized there's no treatment or...

No. It seems it was stuck at the customs. I think I contacted uBiome some weeks ago but didn't receice a reply. Maybe I'll try again. I'm still very interested in hearing about your results.

Mine didn't arrive at all, obviously. :(