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  1. Inara

    WHO ME/CFS coding - April to May 2018

    That is good. But it doesn't mean it will stay so, right? Thank you for all the info! Very enlightening. At least this is crystal clear. That's why I'm so cencerned.
  2. Inara

    WHO ME/CFS coding - April to May 2018

    That would have been me - I am sorry. I think it shouldn't be ok to put signatures on documents without having the explicit permission to do so. In case of Foward-ME, I understood that every organization remains independent. If all agreed, however, that every produced document by Forward-ME may...
  3. Inara

    WHO ME/CFS coding - April to May 2018

    Pooh! But still, who knows...with all these unpleasurable surprises and developments... This is the best psycho invention ever! They have achieved where others before wouldn't dare to go - as a psychologist/psychiatrist into biological medicine. Now we might get the mixture between psycho...
  4. Inara

    1st ME/CFS Canadian Collaborative Conference

    I am almost practicing 1 hour a day, and I can tell you it doesn't work; at least not for me. Maybe I don't have the right mindset. Maybe I'm too positive? I can't hear that "reprogramming" sh** anymore. I know at least one person with ME whom I would view as very competent in "reprogramming"...
  5. Inara

    WHO ME/CFS coding - April to May 2018

    I want to know what was/is going on. I want a statement by those who were responsible. I want to know the motivation and what's the plan. This, after O'Leary's statement that BDD is no problem for ME... It's very strange. This is so very troubling...Imagine ME under BDD or the like in ICD and/or...
  6. Inara

    WHO ME/CFS coding - April to May 2018

    I have a really bad feeling.
  7. Inara

    WHO ME/CFS coding - April to May 2018

    I can't believe this. :jawdrop: I am so sorry and shocked. This is bad news indeed! Me too!
  8. Inara

    One side effect of being young, female and sick: People won’t believe you

    I think it is very wide-spread. Being without empathy is a key qualification for building a career nowadays.
  9. Inara

    World ME Alliance, was previously IAFME: International Alliance for ME

    I really would like an answer to that. Very good question.
  10. Inara

    WHO ME/CFS coding - April to May 2018

    Did you wish it or why were you dismissed? Not good if you didn't wish it...very worrying.
  11. Inara

    Medscape: More Evidence Anticholinergic Meds Boost Dementia Risk

    There was a previous study about this in 2015: https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2091745?resultClick=3 This new study works with larger numbers (around 40.000 patients and 280.000 controls). Anticholinergic drugs are also "First generation antihistamines like...
  12. Inara

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    This is a huge problem. I had discussions about this that strongly reminded me of discussions with religious people (here Chrisrians of a certain group). Indeed, people who believe in the interaction between body, soul and mind - as it was called in the past - simply view it as a universal...
  13. Inara

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    I think this needs to be highlighted. More and more problems of any kind - economic, social, illness etc. - are individualized. Of course, there are interactions between an individual and the setting he lives in. That's why psychological "solutions" are applied to economic/financial/social/any...
  14. Inara

    Jen Brea $100,000 crowdfund for 2018 #MEAction activities

    I donated what I could to David Tuller. Simply bad timing, sorry :(
  15. Inara

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    In fact that is something I was wondering about: What can you do in the case an authority purposefully acts against the law? Now, it is very dificult to prove an intent, but in this case - of the lawyer - he claims they ignored certain evidence, which can be shown more easily. There is the...
  16. Inara

    Why Bioethics Should Be Concerned With Medically Unexplained Symptoms. (2018) O'Leary

    There are philosophers and "philosophers" - just as there are different characters.
  17. Inara

    Fecal transplants not effective in patients with both IBS and ME

    So why is IBS called 'psychological' if fecal transplants help? Wouldn't this point to deranged microbiota or whatever? And, I wonder, were people with IBS checked for MCAS? Would this influence the result?
  18. Inara

    Wesselys Mental Health review could also replace Mental Capacity Act

    Well, reminds me a lot of what is happening in Germany...Some "experts" are asked for their "opinion" about the mental health status, "experts" give a certain advice (e.g. professional keepers instead of a trusted person an incapacitated victim can name, laws that make it easier to force people...
  19. Inara

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    I hope you'll be right @Trish. I really do! Here, it is common practice of the authorities to "save" money by doing things that lead to a denial of benefits - things that are illegal by law. Your only option is to hand in an appeal - which leads to nothing because the authority won't change...
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