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This is so confusing! Does he know himself what's right and wrong? Now what is it? Did they study chronic fatigue? Did they study people with any illness having chronic fatigue, too? Had people chronic fatigue right away and were misdiagnosed (with ME; or MS, cancer, Lupus...)? I really don't...

I feel so, too. I just have a such a negative feeling when watching that video, and it's not the compassion I feel for Whitney - for whom I have so much compassion. I also agree on the other points you made. Although I think it's definitely ok to use politics for "our cause", I don't want to...

I'd say that's also correct here - also no evidence. "Burnout", which is officially re-named depression (also I can't see the evidence of why burnout and depression are the same), could very often be ME for instance. People with burnout are said to "recover" with rest and (pleasant) activity (of...

I watched the video that was sent in the eMail, and there is this pleading sign.

I feel like you @Andy. Very unhappy with this. I'm also not sure if it's "ok" to link a petition - that has a certain scope for which you sign - and other stuff together, which could suggest people signed for both. Actually, I'm a bit angry now that I think about it for longer...

There's something interesting I read in a book by Gerhard Strate (Der Fall Mollath). He's arguing there is an ambivalence between instinctive needs and reason/humanism. The human still has an instinctive need to identify unwanted groups and to exclude them. But he also wants to be "civilized"...

Oouuuccchhhh :x3: Aaarrrggghhh :dead: There's nothing to be said...just speechlessness... Edit: Yeah, sure...In your dreams...

I like it! Well-said @Keela Too (But don't hope to tease emotions where none are...)

Wow, thank you @Joh for checking, very valuable! I don't think these statements were in there before. I remember it sounded pretty much like "Evidence is clear - CFS is psychological, only a minor problem, and CBT/GET help". It seems this has been relativized to "it's our opinion". It's not...

Let's hope! This would be very good.

@Sid, you give examples of biochemical alterations that lead to changes in the human, amongst others behavioral changes. All these are not examples of "mental illness" as defined by psychiatry (or areas of psychology). It's only that psychiatry adopted them in the first place (as so many unknown...

Interesting (on p. 40 of the guideline), their own reason for being "selective":

I've just read it. This is really a great success. It's very important. Please German people with ME, give a chance the German Association.

I would leave an organization instantly if something like this censure happened. We could need money for real fights before courts, processes that might benefit many people with ME.

I simply cannot understand how members don't leave this organization. Everytime there comes a new guideline about tiredness Fatigatio behaves in the same manner - disgraceful! Shame!

There are good reasons for it being a social construct. What are the good reasons that mental illness is real, in the sense as it is defined by psychiatry? There is no question about the existence of odd or strange people, of people that have physical illnesses that lead to mental behavior...

I also found this again: https://www.s4me.info/threads/michael-sharpe-skewered-by-johnthejack-on-twitter.3464/page-18#post-67701 Great, thank you all!

Thank you so much for looking @Snowdrop! Maybe someone/I will come across it again...

What "relevant" is decides a doctor, and in my experience, symptoms/findings are often classified as irrelevant. My experience is also that only the most basic tests are performed - no checks for small fiber neuropathy e.g., only rudimentary ENG, but claiming everything is perfect with the...

In case of epilepsy the dosage is somewhere around 150-300mg I was told. With Pregabalin, the pain is ok. But I reduced to 12,5mg. I will make a brake tomorrow and then I'll see if the pain is gone or at least tolerable. A very clear statement. :)