Search results

Thanks MEMarge. I've been absent from ME forums for a while but hope to get back into it.

Hi Everyone, I am Orla, one of the co-authors of the study. Might see some of you at our talk.

Yes I agree with this totally. I am a bit behind reading this thread but just wanted to say amen to that. The "something is better than nothing" have left us with harmful treatments.

I've been told my blood pressure is normal after a tilt-table (well one of those normal, but...). However, if you look at the print-out from my tilt-table the blood pressure drops suddenly and that is when the tachycardia starts, and then the blood pressure rises again. So presumably the...

I agree that I don't think the policy would necessarily fail quickly, but the misdiagnosis issue would affect a much broader range of the community, I think, than the benefits issue, and I think there would be a greater scandal around it. The benefits issue will mostly impact on poorer people...

I don't they would have any major problem recruiting people to work at a MUS clinic. It might not be most serious clinicians first choice, but we know there are plenty of idiots/careerists out there who don't really care and if there is a career to be made out of MUS they will be like flies to...

No that is not the list I am talking about. Colin Barton's was IMEGA-e. The other list (I'm pretty sure it was called ME Message UK) was set up I think by the ME Association, Afme and possibly AYME. I thought it was creepier that Deary joined that one as it was basically a patient support list...

I remember years ago being on an ME forum which some groups had set up. I think it was called ME Message UK. The ME Association was involved, I think along with some other groups and patients in general. Vincent Deary joined but didn't introduce himself. Ellen Goudsmit was on the list and...

I haven't read this yet but looks interesting http://www.whentaniatalks.com/powered-mobility-options/

I thought I would post an update. The choir raised 1,395 Euro for the Irish ME/CFS Association :)

Just for you wonko

Some points on the travel scoot: Light-weight and foldable: It is very light-weight and comes apart easily, and folds very small, so relatively easy to get in and out of the car boot. The main part is about 20 pounds so still fairly heavy, but not too bad if only lifting it in and out of the...

Hi Alvin, I find the control easier on my hand than the lever type but it might not suit some people at all. I like it because you can just move the throttle and just keep it in place with a normal (even fairly light) handgrip. About the throttle control, even though I prefer it, it might not...

I have one of these and it is brilliant. It is expensive but has lasted well. I have had it for 9 years now with only some minor problems (easy to fix - some of these potential problems have been ironed out in newer models). I am on phone now but will write more later.

Last one for tonight. One critic refers to how the therapy sessions are focused on anger and he refers to them as Hate Sessions. Sessions where more and more hate is considered to be therapeutic. He gives a good description of how people get sucked into this (after 30 minutes in especially). A...

CNN producer goes undercover (as a depressed patient) and the therapist seems to be starting to work towards diagnosing her with repressed memories of sexual abuse (and gives her a book on it). One person mentions one of the reasons patients fall for it is that they are told the books that they...

I know, at best all anyone can hope for is that some of them get sued, their insurance companies pay out and restrict their practices (or refuse to insure them so that they have to stop practicing). I haven't really got a sense of how all the madness stopped. I wonder if illness insurers as...

Multiple Personality Disorder (MPD) This isn't as interesting as the other pieces, but still has a few gems. At about 26 minutes, a psychiatrist who treated "Sybil", while her usual therapist was away, said she never exhibited alter personalities when with him, but also other information from...

I know i am posting a lot here but want to do it while it is in my head and the links are on my computer. Multiple Personality Disorder This is interesting about Sybil (supposedly a multiple personality disorder). Personally I don't think she was hysterical never mind MPD. I think there is a...

I am wondering if this sort of stuff was maybe a factor in Simon Wessely and Co. thinking that ME was a case of mass hysteria fuelled by "believer" doctors? Maybe they thought they were being a voice of reason against a similar craziness as the satanic panic etc? Once there were in then they...