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It’s very worrying that Jen has set herself up as a spokesperson when she knows so little. Besides not fully understanding the history of the illness (and is therefore likely to repeat any mistakes or waste time and effort reinventing the wheel, she seems to think she knows a lot about UK health...

Action for ME seem to always come late to the party. It’s a bit late now to sign the letter to the Times. Why weren’t they fighting our corner all along? I was a member. I wasn’t even allowed to comment on their Facebook page. They constantly claimed I wasn’t blocked, but they never sorted out...

Can I have my name added to the letter, please? Thx

Can I have my name added to he list, please?