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  1. L

    Building an evidence base for management of severe ME (including sleep management)

    Do not push them.
  2. L

    Building an evidence base for management of severe ME (including sleep management)

    Yep
  3. L

    Building an evidence base for management of severe ME (including sleep management)

    When I was severe I wanted to be left alone. No advise. Let me do it my way. It was hard enough to stay alive. No room for rules. In dutch: Niet aan mijn kop zeuren.
  4. L

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Can you reveal how hot?
  5. L

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    I think B but they are relevant to the symptoms.
  6. L

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    Problem is there is not a good fever.
  7. L

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    Thank you
  8. L

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    I agree
  9. L

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    I have no doubt oxidative stress is a big player.
  10. L

    Who is Simon Wessely?

    I agree
  11. L

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    I think the ATP problem is a result of something else. I would say find that something else.
  12. L

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    If I do not push through the after exertion events are less severe. lately I have been working in the garden I can not doing it standing, must sit on my knees but I have removed a lot of weed that way. If I stop in time and rest a while I can go on with what I was doing, If I do not stop in time...
  13. L

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Thanks
  14. L

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    What kind of cell dying?
  15. L

    Use of stimulants for cfs

    If you want to overdo take stimulans. If you want to give your body a chance to recover do not overdo.
  16. L

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Yep
  17. L

    Can we call ME/CFS a disease?

    I can live with that
  18. L

    Can we call ME/CFS a disease?

    In dutch we use the word ziekte. It covers everything.
  19. L

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    I think they did not, They were in a hurry.
  20. L

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Prof Kevin McConway, Emeritus Professor of Applied Statistics, The Open University, said: But suppose that the debilitating symptoms of ME/CFS turn out not to be caused by the sort of stress response in blood cells that is being picked up by the new method, but that instead the symptoms and the...
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