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Thanks for providing a different perspective, @Hutan. I think part of the difference of opinion is because we are talking at cross purposes. It depends a lot on which definition of FND you are talking about, the narrow range of neurological symptoms of unexplained aetiology, as in the diagnostic...

That all seems pretty sensible to me. In fact, why not stop there, it's all that needs to be said. Edit: They probably should add that currently unexplained or functional does not mean psychosomatic, it simply means the physiological explanation has not yet been found. You'll be pleased to here...

I don't know why I'm ploughing on with this. I have no idea whether this is helpful. Perhaps I want to try to contribute to making subsequent papers from this group more useful. There is clearly a need for something to stop pwLC being wrongly diagnosed as having FND when they don't and as being...

More ramblings, this time mostly on FND, and comparisons with criteria and aetiological models of FND and ME/CFS

More ramblings, this time on PEM. Quoting from the article: That attempt to describe PEM as a host of symtoms following exertion, and PEM being 'responsible for episodic disability' seems unhelpful to me. It both confuses cause and effect, and conflates 'symptoms after exertion' ie...

Apologies this is a bit of a ramble and may not make sense or be particularly relevant or useful. I'm just posting it because I've written it. I've put most of it in a spoiler so as not to clutter up the thread discussion. I've decided to take a more thorough look at the historical and...

I assume it was the paper that chose to use the photo. Thank you to those writing response letters.

Perhaps it would be more helpful to frame the argument as Long Covid and ME/CFS are not psychosomatic disorders.

I think I expressed that point too baldly. I was trying to make the point that the symptoms are different but none have evidence of being psychosomatic. I got stuck on that diagram which seems to me to be wrong historically. Maybe in the USA it's different, so they view ME/CFS as having been...

Since the lead author's name is unusual, I googled it without opening the article link. I assume this is him: Duke University School of Medicine Gregg Robbins-Welty Gregg Robbins-Welty, MD, MS, HEC-C is a PGY-5 and chief resident of the combined internal medicine and psychiatry residency...

That list of ten items is so vacuous, it reminds me of the sort of 'wellness' advice you get in clickbait articles.

Thanks as ever David. It's good to draw together Miller's infamous historical and current association with the BPS cabal. I think that Guardian article is deeply insensitive to pwME, their families, and those mourning loved ones. I hate seeing Maeve's image at the top of such a travesty of the...

I have done a quick skim read and can see a lot of thought and work has gone into this article and some useful points are made. I have some concerns. If I'm misinterpreting the article please say so, I admit I haven't read every word. The neuroimaging part is over my head, for example. I would...

It's good to hear you are able to eat again. If it's feasible for you, a home visit from a physiotherapist may help, as they will be able to assess your specific needs and recommend exercises/movements to help. If I were trying to deal with this on my own I think I would concentrate on lying...

That article by Alastair Miller is inaccurate, deeply inappropriate in these circumstances and insulting to pwME. He should be ashamed of himself. There is NO evidence to support this.

I'm fine with judicious use of swearing in a blog. There is only one swear word in the whole article and it seems to me to be wholly justified and I find helpful emotionally, as it expresses David's solidarity with all of us in this dire situation. And I'm an elderly middle class woman who some...

@dave30th An excellent article, thank you. A misspelling of Maeve's name in the paragraph that begins: The inquiry is designed to answer that question.

Thanks for the link. I think if you want to read a summary of the first week at the inquest, this is probably the best article. It places Maeve's own words at the heart of the article and raises all the key points we have been discussing really clearly.

Can someone post a link to an archived version.

Do you mean the ones in the media articles or the ones on this thread? I think we need to be careful either way, as people are inevitably selectively quoting, quoting out of context and may accidentally misquote, and I think if you want to use material on this thread you'll need to get the...