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I think it's probably too early to see what good will flow from this situation. Another thread would just split the discussion. If you want a brief view of what has happened so far, maybe look at the summaries in the News in Brief, and read the main articles linked there, including David...

I've only read the abstract. This seems to suggest nothing of note was found.

Thanks, Binkie4. I think you may be reading too much into Cochrane's reply. It came only an hour or so after our email being sent, and is just a standard acknowledgement presumably from an office person. We have yet to see whether we get substantive responses to anything.

You beat me to it. I watched it too. He seemed to be pointing to his chest as the problem area. I find it concerning that sports people are being allowed to compete in very strenuous sports when positive, not only because it may contribute to going on to develop Long Covid, or possible...

I also hesitated over that, but it didn't say the child had Covid, just an infection. And he clearly fitted NICE guideline ME/CFS diagnostic criteria. Of course he could have both LC and ME/CFS.

From the above quote: I assume this is based on the effort preference nonsense in the Walitt paper. And so the harm goes on.

We are aware of this issue. When we updated our forum rules recently we added a rule that permission will not be given to use any part of the forum as source material for research. We also made a copy of the rules public, so there is no excuse for researchers not being aware of this rule...

I did the 5 questions and of course scored 5/5. It presents a single case of a child who gets ME/CFS aged 13 and takes you through a series of scenarios as he reaches adulthood. I think it's pretty good, if taken seriously it shows how best to treat someone and asks what should be done in each...

Could it be something as simple as those who go to Reddit to discuss their psychological and health issues will be open about their long covid, whereas those who opt not to discuss such personal health issues on Reddit will continue not doing so when they get long covid? I agree this research...

That brief comment is ambiguous. It could be read as raising the issue that people with total allergy syndrome have similar difficulties with medical care. I don't think we have any way of knowing what the writer meant.

Posts discussing names for ME/CFS have been moved to: Diagnosis of ME and the use of the labels ME and CFS.

The thing that surprised me in this article was not the stuff about pain, which I have seen before, but the bit about women being made to wait longer in emergency departments.

We haven't given up on this campaign. The forum committee sent another letter today to Cochrane Complaints. It's posted here: https://www.s4me.info/threads/s4me-2023-open-letter-to-cochrane-request-for-action-on-the-me-cfs-exercise-therapy-review.34973/page-2#post-547317 To summarise, we...

Thank you, @Naomi10. An excellent article, and so tragic it is needed.

I'd steer well clear of anything medical on YouTube. Even doctors with strings of qualifications are putting out all sorts of unfounded theories and rubbish. And as others have said, anyone can call themselves a therapist. I'd also steer clear of the neuroplasticity and mind/body stuff you...

The World Health Organisation advises strongly against using people's names for diseases. https://www.who.int/news/item/08-05-2015-who-issues-best-practices-for-naming-new-human-infectious-diseases

Can you clarify? You are suggesting McE and Beard may have been right that it was mass hysteria, but do you mean: a) the people were sick, and it was 'mass hysteria' in the sense that the doctors told them it was neurlogical when it wasn't, in other words, mass misdiagnosis or b) that it was...

Thanks, @MSEsperanza, I have read the 4 reviews, all positive. Many thanks to the reviewers. The peer approval note says: @Jonathan Edwards, will your proposed amendments to the article mean it has to go through peer review again, and if it passes peer review again will that mean a journal...

Good letters, thanks to everyone who submitted letters.