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I think the BPS idea is that we aren't really as disabled as we think we are, that we are misinterpreting signals from our bodies. I don't think they have any idea just how sick we are. I suspect most of them have never visited a person with severe ME at home and spent time observing and...

Gladwell is a senior member of BACME, he has also for a long time advised AfME on their documents about ME, including their very lengthy pacing booklet which has been improved somewhat but still, as far as I recall, recommends pacing up. In his role at BACME he's part of their collaboration...

I think that's the problem. It never was a logical explanation of ME/CFS. I think the idea was supposed to be that we aren't actually sick, our ME symptoms are not symptoms of being ill, they are misinterpretations of our perceptions of the temporary effects of deconditioning.

Also posted on the News from the UK thread.

I think if the theory on which PACE is based were purely a deconditioning theory it would be easy to counter with excellent articles like this one by @ME/CFS Skeptic. Unfortunately it's not the sole basis of their theory. Deconditioning in ME/CFS is seen as part of a viscious cycle of initial...

Posting this here for now, since I can't think where else to post it. Cochrane sometimes published comments about reviews which are submitted via their official comments system. There are 3 comments about the 2019 Larun review plus a series of comments about older versions of the review. They...

So first step is pacing. Good. Second step is hand you over to a bunch of therapists. Can be good if it is supportive and the pwLC needs support, potentially bad if they try to contradict pacing with rehabilitation and GET. Most likely outcome is wasting the pwLC's energy and money on useless...

I have now read the article. It is very clearly set out and written, and I think is very worthwhile. I wonder whether a journal would publish it.

A worthwhile topic to study, thanks, @ME/CFS Skeptic. I haven't read your article yet. Just a couple of points on your twitter thread. They tried to convince patients, there's no evidence on whether they did or not succeed. I'm not sure which bit of this you are saying is ironic.

Some posts have been moved to a new thread: Trial design for drug trials for ME/CFS - discussion thread

Posts discussing this have been moved to this thread. Please go there to continue the discussion.

So no significant difference in time in hospital, and no long term cost savings. What a waste of money. I suspect rather than psychiatric intervention of this type, it would be better to focus on adequate provision of home care after discharge, since lack of after hospital support seems to be...

I doubt they actually have access to that amount of money. All we've seen so for of the ThereForME campaign is 2 carers trying to raise awareness. I guess they are probably wanting to do some publicity on the sort of research that's needed.

I thought it was pretty good, though I get fed up with presenters who interrupt people in the middle of saying something significant with another question. There were a couple of times when I think that led to good points not being able to be completed.

Daily mail article is based on the Good Morning Britain TV interview with Sarah Boothby and Charles Shepherd.

I don't suppose most people at NIH have any thoughts at all about ME/CFS, and are happy to leave it to Nath and WalItt. If it's those 2 running NIH in- house research, I'd be glad they are not going to continue to research ME/CFS. They have done too much harm already. I just hope this doesn't...

That's fantastic to see they have given so much space in the print edition. These are the 3 online articles we've seen this week, which may be the same articles with different headlines. The Guardian Devon woman died from malnutrition due to severe ME, coroner concludes The Guardian What is ME...

I would want to know more about the project before taking them up on this. The subtext on the website is about sex and gender, and may be a disguised project with a particular ideological standpoint nothing to do with science. As we are all too aware from ME/CFS issues, data can be found that...

I think if you can find a good counsellor their training should mean they don't make judgements about your physical or mental health or try to change you according to some psychological theory. Rather their role is to be a good listener who provides a safe space for you to explore your thoughts...

Good Guardian article today: I’ve been tired since I was 13’: ME patients hope harrowing inquest will change perceptions Tells Maeve's story with quotes from her diary, her parents, David Strain and Sonya Chowdhury.