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That's very troubling. Does anyone have any idea why Glasziou is so adamantly supportive of GET? I understand his background is as a GP and then a professor of evidence based medicine and he's at the heart of the Cochrane project. The fact that he and Peter White were advisors on the 2019...

There's a few psychiatrists we could name who clearly weren't listening that day.

Thank you @RaviHVJ and @Yann04 for informing us about this group. Definitely one to steer clear of.

Also Glasziou along with Peter White was one of two advisors to the Cochrane review.

That's very good news. We'll done to you for making a big difference.

I don't think it's about psychologists and rehabilitationists being bad people, or not caring, or being particularly more arrogant than any other profession. I think there are several contributory factors to the rejection of the suggestion that their work can cause harm. First, the natural...

I think it would be reasonable to ask the MEA to publish the protocol or detailed funding bid from Tyson, Gladwell et al that persuaded the MEA to fund this project. I can envisage a scenario where the bid highlighted the NICE suggestion that we need better outcome measures for clinical trials...

The MEA trustees are elected by members. https://meassociation.org.uk/about-the-mea/who-we-are/ The current trustees are: Neil Riley - Chairman Charles Shepherd Martine Ainsworth-Wells Ewan Dale David Allen - Deputy chairman There are also some associate trustees: Nicki Strong George Evans...

This is a sub study within Burton's big study that seems to have been going on for years.

I have read the paper. It seems to me that all they are doing is spending a bit longer than usual with patients to take a detailed medical history, then waffling on a bit about sympathetic/parasympathetic balance and the brain, then going on to suggested actions such as breathing exercises to...

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Ugh. That's a new one - biographical repair. Yet another way to get patients to believe some nonsense and in consequence to pretend they have recovered and to stop bothering doctors. How to lie to patients and get away with it.

They are repeating what is said in the PACE trial documents and in the Cochrane review. It is factually incorrect. Surveys specifically about GET led by specialist therapists using the PACE model show very high rates of both physical and mental harm from GET. Maybe someone should send them our...

A bit of a rant. Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm? To answer my own questions: Research that causes harm includes all the stuff about catastrophising and chlidhood trauma and perfectionism and anhedonia...

It's good to see you are willing to learn and open to hearing different views. I note you say you have a lot of interest in ME/CFS. I think you have indicated you are interested in working further on ME/CFS after you complete your Masters' degree. If that's the case, I hope you will continue to...

Was there any mention of PEM, or which diagnostic criteria they used?

Maybe it's a translation problem.

The heading speaks for itself. We have had a couple of instances recently of researchers joining us to discuss their research who are completely in denial about the potential for their work to cause harm. Thus strikes me as very odd. How could they be so unaware. Discuss.

GET for the brain. :banghead:

I have been thinking about this again and have re-read the flyer and information for participants. Neither mentions anything about delving into childhood experiences or family dynamics. Can I ask again what the point of this study is? Do you have a hypothesis you want to explore, or have some...