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  1. Trish

    UK Parliament: Westminster Hall debate on ME/CFS, Wednesday 1st May 2024, 16.30 - 17.30

    Are these the same article with a different title?
  2. Trish

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    I ran out of energy to follow it half way through, but left it running most of the way through and picked up on a few bits and pieces. I gathered from the diagram with several columns that was too small to read that they had an overarching hypothesis and the presentations were ordered to create...
  3. Trish

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    So basically they are saying it's all OK because they believe it's OK, and their invention of new terminology was OK because they liked the term effort preference. I thought they were supposed to be doing science, not making stuff up and building their whole report of the study around a...
  4. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    The response is posted on the letters thread. No apology or any other communication from Sarah Tyson.
  5. Trish

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    The example he gave of Parkinson's disease and EEFRT he said gave similar results to ME/CFS, but when given dopamine the positions were reversed, with the PD group choosing more of the hard tasks than HC. Surely that indicates increases ability to perform a fine motor task with dopamine in PD...
  6. Trish

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    I agree the defence of EEFRT was very weak. Do we know why they included it in the study?
  7. Trish

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    I wish I could have manage to write down the effort preference section and the answers to questions about it. It was notable that even when answering questions about it, they were reading out prepared answers. Dis I hear correctly that Walitt attributed the preference partly to unconscious...
  8. Trish

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    I thought the sex specific omics differences were interesting. Some of the omics data didn't appear to differentiate ME/CFS from HC until they did the analysis by sex, then within each sex there were clear differences between ME/CFS and HC. I think those omics were from blood (cells/plasma?)...
  9. Trish

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    Now we are being criticised for picking apart and criticising the research. We're being told to 'hold hands together'. Lots of praise for Walitt.
  10. Trish

    Long-Term Effect of a Tablet-Based [CBT] Group Intervention on Step Count, Fatigue, Self-Efficacy, and [QoL] in Older Adults With Arthritis 2024 Fiske

    Glancing through that table, the thing that stands out to me is that the intervention group started with much higher step count (7300 versus 5100) and lower fatigue than the control group. The intervention group cut their step count by 600 in the first 4 week and kept it at that lower level...
  11. Trish

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    I clicked on the video on this thread, then the YouTube logo at the bottom to get it to take me to YouTube, then on 'more' under the video where it gives a summary. At the bottom of the summary it says Transcript, and I clicked on Show Transcript in blue. That took me to a line by line version...
  12. Trish

    Personal experience of using cumin to treat PEM

    :laugh: A risky thing to do on a science forum!
  13. Trish

    UK Parliament: Westminster Hall debate on ME/CFS, Wednesday 1st May 2024, 16.30 - 17.30

    Sajid Javid is standing down as an MP at the election. I suspect he initiated the debate to try to force his party to get on and complete the implementation plan he set up that was supposed to be completed in 2022, or at least to get it recorded in Hansard that he had tried, and that his party...
  14. Trish

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    I just clicked on the link on YouTube. It's pretty hard to read.
  15. Trish

    UK Parliament: Westminster Hall debate on ME/CFS, Wednesday 1st May 2024, 16.30 - 17.30

    The main things of interest for me: The government delivery plan is unlinkely to be published before the general election. They are expecting to publish a summary of the submissions to the consultation soon, then start work on finalising the plan which looks likely not to be completed before...
  16. Trish

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    I've glanced at some of the transcript. It looks like he's gone full-on attack on post viral stuff and the NICE guideline. Nasty. Not sure I can bear to watch it.
  17. Trish

    Personal experience of using cumin to treat PEM

    I'm none the wiser. Can you explain, since you seem to be saying you know what your inflammation temperature is in numerical terms. How do you measure it?
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