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Not a good advertisement for rehab. They should have been able to work out whether the ones who had rehab were improved or worse after rehab, and whether their status before rehab was worse than those who didn't undergo rehab. In other words, surely it's not good enought to just dismiss this...

Thank you Joan.

The discussion is fine, much like here.

Some of us in our 70's have fitbits and smartphones too. Though I confess I probably wouldn't if I didn't have my daughter in her 40's living with me who does all the tedious stuff of buying them for herself, learning how to use them, and then helping me with mine. I think it's not a matter of...

For the record, here's what it says on the website: https://www.gold.ac.uk/careers/work-placements-and-internships/goldsmiths-internships/grip/ ______________ GRIP: Research internships Develop your research skills and your CV over the summer. GRIP is a programme that gives undergraduates six...

I expect Paul Garner will be delighted.

Oh dear. This is dreadful. It would indeed be interesting to know who is behind it. Given some people like Parker and Landmark seek to legitamise their quackery with academic qualifications and laughably poor quality research, I'm guessing it could be Agle herself or someone whose treatment she...

Reminded me of Alice in Wonderland and the bottle labelled 'Drink me'.

If you're doing this indoors, maybe there's a problem of build up of cinnamon smell molecules in the air around you.

It's good that the point about cumulative effect is raised, and the question of how we decide between the options in FUNCAP. My idea on this thread is that we compare which of these most successfully captures the experience of our functional limitations, including the slow recovery and...

Does it say what the treatment they use is?

That's interesting and worth saying. I also don't do lots of the things on the list because of pacing, but to me that means I should rate them as having a serious impact. I do get the bit about cumulative activity. Everything contributes to cumulative effects, so the scoring can only ever be...

By email: Dear participant, We are excited to announce that we are now uploading the complete series of UniteToFight2024 conference videos to our YouTube channel! Relive the insightful sessions and catch any moments you might have missed, all at your convenience. Our YouTube channel is online...

The videos of the Unite to Fight Conference are now available on YouTube. https://www.youtube.com/@UniteToFight2024

The NHS is morphing into Goop level wellness crap.

I had the impression it was only open to clinicians.

I've been watching some cycling road racing. The professional cyclists are monitored continuously for heart rate, speed, effort, etc. They clearly find them accurate enough. Why can't we? Coming back to this discussion is like stepping back 50 years.

I think Sarah's point was a bit different. She was responding to my questioning the level of exertion that participants were asked to rate as strenuous to mild, or something like that rather than specifying types of activities as benchmarks. I raised the issue of a person whose ME deteriorates...

I've been trying to sort out why I find the FUNCAP easy to understand and do, and a useful and accurate reflection of my capacity in each domain, and by contrast MEAQ so impenetrably difficult and ambiguous. I think the problem for me is mainly this option in MEAQ: Yes, but with adaptations...

I've started a thread to discuss how different function questionnaires ask the questions and the options they give to choose for answers: Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations