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  1. Sasha

    Dysautonomia

    If you find you may have POTS or any other form of OI, a bit of googling takes you to sites such as Dysautonomia International (and plenty of others, including John Hopkins Medical), all telling you authoritatively that this is a form of dysautonomia. Until I saw you posting about it recently I...
  2. Sasha

    Placebo effect discussion thread

    I don't think we could separate those two groups of PwME in advance. The ideal would be to get people we know go through these phases, or who are likely too (like Dr Fluge's patients!).
  3. Sasha

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    That's ironic, because every time I use voice recognition software, it turns rude words into polite ones.
  4. Sasha

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I am a native speaker but was embarrassed to ask! I'm looking forward to an explanation of it, though, because I really like it, whatever it means, and intend to add it to my vocabulary.
  5. Sasha

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Surely the editors of every major journal can't be in on the conspiracy of silence.
  6. Sasha

    Placebo effect discussion thread

    Quite a lot of us might be in those subcategories, though. I remember it being said that ME/CFS might be a dozen different illnesses. Whoever those people are who are going into 6-month remissions, if they were given an ME/CFS diagnosis, they're presumably in an ME/CFS subcategory and need...
  7. Sasha

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Can you offer a guest editorial? I honestly can't understand how this situation prevails. It's frankly weird how doctors are expected to be 'collegiate' in this situation and not criticise other doctors. What is the point of doctors who are loyal to each other rather than to patients?
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