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Oh wow, that's amazing! It's very expensive but when I did a search for it, other things that looked a bit similar pop up so I'll have a proper look later (because now, I have to go and lie down! o_O).

@Trish, sorry, that sounded very ungracious! It's a good suggestion for people in general and I do listen to podcasts and audiobooks a bit but I want to be able to do more of what I could do if I were upright.

Thanks! That would be good for an e-reader for people lying in bed but I have a mattress on the floor of my lounge (warmer, lighter, and less depressing than being stuck in my bedroom) and need something floor-standing.

I'm bored out of my skull with that kind of thing. I have to spend hours a day flat and I want to be productive, which I can be if I'm reading.

That tends to be a harder position for reading because I wear glasses and the squash against the side of my face lying down so I tend to hold tension in my body to prevent it. I really need to lie flat.

I have to spend tons of time lying dead flat because of my orthostatic intolerance. I'd like to be able to read, while my body is completely relaxed, but this would mean having my e-reader, book, or laptop held somehow above my head. Has anyone figured out how to do this? I used to have a...

Wow! Can't wait to see that (well, see it soaring over my head, anyway). Exciting!

I often think of Alem and what an amazing thing he did for us, despite being so incredibly ill.

Are the trials and DNA study only for people in the US?

Can you ask your doctor, or a pharmacist?

Ooh...

I just saw Seven of Nine do similarly in an old episode of Star Trek: Voyager. :borg:

I couldn't see anything to indicate he's stepping down but I didn't have a very good look. Did I miss it?

Bump.

Same here. I only ever talk about it when faced with helpful suggestions that I'd feel better if I went for a little bike-ride, and then I explain the reality of things every so gently, like @boolybooly does. Most people are genuinely trying to help, and if I didn't know about ME/CFS, maybe I'd...

Congratulations, Kitty! It's really distressing to go through these reviews, so the less often, the better.

I can't find any info about 'Light Touch' PIP reviews on the government website. Is there any? I've found this on the Salford CAB site:

It's the standard form that gets sent out for a PIP review. AR2 is the form the for 'light touch' review.

I hadn't been aware of this. It's still under test and only in certain locations:

Is it worth changing the title of the thread to, 'Do you want the video of Maeve Boothby O'Neill's case made public?' to help pull in the punters?