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I get the exact opposite impression! My bolding: If they were only interested in fake papers, surely they wouldn't have said 'flawed and fake'? And what is every single CBT/GET paper but a flawed paper that has a serious impact on medical guidelines? We've seen Cochrane fail repeatedly to...

BTW, if I type 'Jonathan Edwards' into the Qeios search box, I don't get this latest paper - just some older ones. Is that just me?

I want to understand what's going on in the black box but equally, I don't understand what's going on in the Zhang black box! I understand how a basic GWAS works but not these other computational approaches and so I have no idea to what extent the results can be trusted.

And PACE, of course. @dave30th

Seems like a perfect place to dob in the Larun Cochrane review, @Trish...

I thought it was odd too. IIRC, they said they had a subgroup that had PEM, and they said that PEM was fatigue after exertion (no!). I was also confused about how only one subgroup had PEM if all their sample had ME/CFS - they should all have had PEM. I wonder if the person presenting mis-spoke...

Are you able to tell us what questions are in the survey?

Just been watching the PrecisionLife presentation on the AfME webinar. They have what seems a very black-box type of way of analysing genetic data. They ended up with a dozen or so different subgroups of PwME by means I didn't understand, and were talking about precision medicine - different...

On in ten minutes...

Has anyone asked them whether they will make the survey open to the public, thus including non-members? If they won't, I think it's important that all UK PwME get a chance to give feedback, because what the MEA do affects all of us - especially in the harmful paradigm in which we live. I'm not...

I'm looking for some posts where people were talking about a survey that the MEA were now doing of its members to get feedback on the organisation. People here were complaining that non-members couldn't take part. But I can't find the posts - can anyone help me?

Thanks, Andy, there's some very interesting stuff on that page that I hadn't been aware of.

This sounds great! Action for ME are putting on a webinar with the latest research updates from Prof. Chris Ponting's Edinburgh lab, with presentations from Dr Audrey Ryback and PrecisionLife, plus a Q&A with PPI (patient and public involvement) representatives (I assume from DecodeME?). You...

I don't think this is even a members-only subforum, is it?

What does 'monophonic' mean in this context? (Google was no help.)

Just bumping this - the webinar is at 2pm tomorrow.

I've always thought that all the different formats for citations that different journals require were a massive waste of everybody's time. The journals should have got together years ago, picked one format, and stuck to it. I wonder how many millions of hours of scientists' time has been wasted...

Thank you, very handy to have a Norwegian person to make sense of this!

Do we know that about problems increasing circulation? I didn't think we did. Is it maybe failure of translation?

@Jonathan Edwards, I know the response rate of 60% in the pilot will be an inaccurate estimate, even if real, because of the small number of patients but I'm wondering how many PwRA don't respond to rituximab and whether they have any options if they don't? 60% would be a ton better than the...