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Or livestreaming it...

I just stumbled across this, posted in 2020, while searching for something else. It seemed a very good initiative. Just wondering what the upshot was? I've lost track of what's happening with this surgery in relation to PwME.

Maybe it's going to be fabulously productive if we get some research findings this year that reveal to the students what rubbish they have been taught.

I appealed all the way up to a tribunal and incredibly, still got ditched. The rubbish they spouted was unbelievable. I don't know how they slept at nights.

Which is appalling. Why are new claimants less worthy than the rest of us?

It's possible to be highly disabled and to get chucked off PIP at review - this happened to me. So even people who've been consistently disabled and on it for years might be affected.

I'm still finding it impossible to be offended by the choice of some doctor 150 years ago to chose the Greek rather than the Latin word for 'womb' to describe the removal of a womb. In the present time, if any woman was to be told by a doctor that she needed a hysterectomy, would she genuinely...

They'd have been well aware that the connection was the word for 'womb'. And they were looking to creating a word to mean 'removal of the womb'. I don't see anything pejorative about it. What is the negative implication supposed to be? That women have wombs?

I don't think the argument makes any sense. 'Hysterectomy' isn't 'rooted in' 'hysteria' - both words come independently from the ancient Greek word for 'womb'.

Google might be your friend there...

I'm so sorry to hear about that, Kitty! What horrible agony. Yes, the new thing is basically an extra-long Q-tip, as I understand it. :thumbup:

I wasn't aware of this amino acids idea. It's hard to keep up muscle mass when you're barely moving and I wonder if this is an argument for increasing protein intake, if there's an extra demand on it for PwME. OTOH, having too much protein presumably isn't great either.

The upcoming January roll-out of home test-kits for cervical screening has just been announced, and it's interesting that a PwME was chosen as the person to feature in the BBC's coverage of the story, as a person who finds it impossible to go for screening in a clinic: Big thumbs up for Hazel...

In my head, the budget for that work was about £100,000. Still, if Jackie Cliff puts in for the grant, we can all get behind her...

I'd thought that if it was long-lived plasma cells or something, that we'd be on a treadmill of treatment with immunosuppressive things like dara, but it sounds as though I have misunderstood (which is good news!). I didn't know a monoclonal antibody could squash rogue T-cells in a couple of...

Thanks, @Jonathan Edwards - that was an absolutely fascinating explanation and makes me wonder how your book is going! Are you still working on it or have you got sidetracked onto other things? It's good to know that you don't think there's any in-principle problem with tackling that problem...

Basically, I'm wondering why some diseases can't be cured when others can - that is, why we can manipulate some aspects of our biology and not others. I'm wondering this in the context of the kind of unpleasant life-long drugs we might end up on if @Jonathan Edwards's paper on Qeios is right...

This really begs the question of what we're going to call our illness once we've got some clear pointers, because PwME and our charities are going to want to call it something. My understanding is that you've criticised the use of 'neuroimmune' for ME/CFS so far because we've had no definitive...

Is it the system that does the damage that is put into the classification, or the system that gets damaged, or both? For example, in MS, I assume it's the immune system attacking the nervous system, and you say upthread that MS is a neuroimmune disease, so it seems to be that both the culprit...

Not your bad at all! :)