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On an individual level, I think that if we're normally stable for years and then exert ourselves well beyond the normal and have that immediately followed by long-term worsening, it's hard to ignore the strong possibility of causation. But you're right that such anecdotes don't have the power of...

I wonder if gradually getting used to cold water is important for safety (for example, if you start outdoor bathing in the summer and keep going as the water gets colder), but might mean that there would be less efficacy as an intervention for ME/CFS if it operates by being a big fat shock to...

I've been wondering how cold-water bathing fits into this. Famously in England a load of people go swimming in the pond on Hampstead Heath on Christmas Day. I wonder if the people who go are self-screening somehow, or just hoping for the best, or if people do get heart attacks but it doesn't get...

I would be worried about safety at my age now of jumping (well, lurching) into a cold bath in case of a heart attack. I wonder what the safety profile of cryotherapy is for older people in particular.

Also, while we're piling on the advice! A job of some kind, whether paid or voluntary, and especially your first job, might not provide you with everything that you're looking for - such as interesting work plus the opportunity to be with people of your own age, or to be part of a team. You can...

Blending messages from a couple of threads:

Oh! Here's a page on it on Karl Morten's website, where the study only costs £38k. Haven't had time to read it yet.

Merged Just starting a thread on this because @Mij posted a tweet about it on another thread. It sounds interesting but I can't find much info about it: On his Oxford University page, it says (confusingly laid out, not sure if all these paras belong together): Anybody know any more?

It seems to have a dodgy rationale, although that doesn't mean it might not work for other reasons.

That's interesting - is there a thread on that cryotherapy study?

What's that?

Thanks! I wasn't expecting that. IIRC CCI is seen here as a busted flush as far as ME/CFS goes? I was getting all excited about the possibility of somebody looking into CBF for the form of OI we seem to have in ME/CFS. I wonder how we might get research like that to happen.

I had a quick look at the reference but couldn't immediately see what a CCI study is. Does anyone know? I only just noticed this thread and read the first post and wondered what it would take to move this important line of inquiry forward. Does this sound like a good step?

All sorts of organisations would probably welcome someone who can programme. But if you really don't want to do that, there'll be other things you can do. Are there particular issues or causes that you care about or that interest you? The key to finding fulfilling work is figuring out where your...

“Opportunities multiply as they are seized." Sun Tzu, The Art of War. :thumbup:

Would it interest you to do something that supports that response instead? Worth reaching out to your local hospital volunteers unit to ask about it? What's important is to start from what interests you, and reach out to organisations in that area that might have room for someone to help on a...

Hi Hoopoe! Going straight into paid work from your situation would be a big step, and possibly quite a difficult one. As a first and easier step, have you thought about looking for a volunteer role suited to your skills and interests, in a charity or NGO that does something that you care about...

@Andy, will the preprint publication date be pre-announced or do we just look for the story on the news?

Wouldn't you need a whole ton of them, though?

I don't think gender comes into it - I just tend to forget about the existence of non-identical twins, and did so particularly in this context of someone offering themselves up for twin research because if they weren't identical, why would they be interesting to research any more than ordinary...