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  1. Sasha

    Criticisms of DecodeME in the media - and responses to the criticisms

    I wouldn't sweat it. I'd just point out that people weren't allowed in unless they'd been given such a diagnosis. Let other people do the work of then throwing up caveats that will make themselves look stupid.
  2. Sasha

    Donate to build on the work of DecodeME

    You're better off not going to the FAQ page, because the link is well buried. Better to follow the direct link I give to the AfME page in my post.
  3. Sasha

    DecodeME in the media

    That's a good question - are there any known GP allies who can be approached?
  4. Sasha

    DecodeME Initial Results Webinar, Thurs Aug 14th, 3:30pm

    Wanted to pull this out of the DecodeME discussion thread, for those who won't be looking at every message in what is quite a technical discussion!
  5. Sasha

    Criticisms of DecodeME in the media - and responses to the criticisms

    All of the people in the DecodeME study had an ME/CFS diagnosis from a health professional.
  6. Sasha

    Genetics: BTN2A2 and BTN3A3

    And hot-dog buns!
  7. Sasha

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Doesn't look like it...
  8. Sasha

    Therapeutic genetic restoration through allogeneic brain microglia replacement 2025 Mader et al.

    Yes! Replace our brains!
  9. Sasha

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Would that only be if they weren't analysing everything so could have a lower probability threshold?
  10. Sasha

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    So they'd do all the analyses, which would take six months, and then they'd submit it, so that publication could take quite a bit longer?
  11. Sasha

    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    How well do the DecodeME findings fit with your model, @Jonathan Edwards? And do they help you refine it, or come up with additional testable aspects?
  12. Sasha

    DecodeME in the media

    Link here, about 2:36.
  13. Sasha

    DecodeME in the media

    It's made the Rhyl Journal, what's the BBC playing at?
  14. Sasha

    Criticisms of DecodeME in the media - and responses to the criticisms

    Is there any way to watch that online? I went to the Sky News site but couldn't fathom how to find it.
  15. Sasha

    DecodeME in the media

    No mention of the study in the opening to the BBC or ITV 10pm news.
  16. Sasha

    DecodeME in the media

    @Hutan, would you have the energy/inclination to copy at least the main media links into your first post?
  17. Sasha

    Donate to build on the work of DecodeME

    The DecodeME site FAQs page has a donation link that goes here to an Action for ME website page that says: 'Help change lives. Help us build on the work of DecodeME by supporting future research into ME/CFS. Donations will be managed by Action for ME, and used towards research projects delivered...
  18. Sasha

    DecodeME in the media

    This is a really good lay summary IMO - I've just emailed the link to family and friends.
  19. Sasha

    DecodeME in the media

    Just caught something I think about a big study on ME and DNA on the summary of the C4 news but it whizzed past me - anybody catch it? Is it DecodeME?
  20. Sasha

    Closed UK: DecodeME updates, was recruitment thread.

    Two hours to go. We should probably all have a big lie down in preparation.
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