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Is anything actually properly known about migraines? Or is there only rubbish?

Oh! Answered my own question, here's the schedule for the 2019 one.

Any idea what goes on in the open public meeting? Is it mostly presentations?

What kind of thing is this? Worth bears of little biological brain turning up, or would we occupy limited spaces better used by people not just munching popcorn?

Looks like a terrifying attempt at FND capture of migraine.

What US DecodeME cohort? I thought DecodeME was purely a UK study.

That's beautiful, @Veronica.

Then why fund the study? This really does seem to show a belief that it's real in adults, and psychological in children, otherwise none of the study would be getting funded.

Altmann's statement strongly implies the opposite, though - he seemed to be getting funding for the adult study but not the paediatric study because of this mad idea.

But if so, they'd have to be ruling out an illness in children that adults have, and my question remains! :)

Is there any possible biological rationale why an illness that's real in adults would be purely psychological in children?

I've just come across this survey. Obviously it can't offer strong conclusions about what works - it wasn't a collection of randomised trials on therapies - but does it offer even an approximate indication of which therapies might be worth prioritising for RCTs, or which theories of ME/CFS might...

Interesting that Dr Altmann says that the patients essentially created the field. Just shows the depth of abandonment - all over again.

I like this one!

Also, just plain old 'What's next?'

Thanks, @Andy. Big question - how can the ME/CFS community help move things forward now, in particular on this genetics research? How can S4ME in particular help? (This latter is maybe not so much a question for the webinar as for Chris Ponting.)

I didn't know that stuff either and I'm really grateful that you posted it!

We might have some ME/CFS brain tissue, maybe as part of this MEA project or this Netherlands Brain Bank ME/CFS project - maybe others? I'd thought there was a long-running ME/CFS brain bank in the UK but maybe it exists only in my own brain.

Let's form a club!

I don't mean upper echelons, though - just a sensible GP who will write about DecodeME for Pulse. There must surely be some.