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  1. Diluted-biscuit

    UK: PIP appeals - advice, recommendations?

    Mandatory reconsiderations nearly always get turned down but you stand a much better chance of a fair hearing at tribunal. Certainly look for any welfare advice groups in your area but if you don’t have any or they are too busy to help then benefits and work are excellent. There’s also a very...
  2. Diluted-biscuit

    Twitter activity of Professor Blanchflower

    I agree with others. You deal with people like this by ignoring them, they want a reaction.
  3. Diluted-biscuit

    Mindfulness Could Be a Powerful Painkiller

    I just roll my eyes now when I hear or read the word mindfulness
  4. Diluted-biscuit

    Proud Accessible Activism: The ME Debate Virtual Demonstration

    Agree completely, angry social media activism on any issue does my head in.
  5. Diluted-biscuit

    Use of antidepressants for/with ME/CFS?

    I’m on sertraline for mental health issues and while it helps a lot with that they have no effect on my ME/CFS.
  6. Diluted-biscuit

    Article: Spain, "Lleida scientists discover a marker that allows diagnosing chronic fatigue [syndrome]"

    Deepl.com can’t do whole web page translations but is very good for translating stuff. Their translation of this seems to read better for me but my biology knowledge is minimal so I don’t know if it provides any more information than the google translate version.
  7. Diluted-biscuit

    What could be done about the Science Media Centre (SMC) in the UK

    Personally I think doing to much would cause more harm than good and that finding a biomarker will be what fully turns the tide. Every bit of misleading information they publish should be challenged but going in too hard just reinforces the troublesome patient narrative.
  8. Diluted-biscuit

    The times they are a changin'...

    Same here but every day life with ME/CFS being utterly miserable and seeing if things are improving research wise and politically are two separate things in my opinion.
  9. Diluted-biscuit

    The times they are a changin'...

    Any progress is a good thing, it’s easy to get bogged down in the problems and forget the small victories.
  10. Diluted-biscuit

    OMF Poetry and Art Slam contest 'Hope and Heart for ME/CFS' January 2019

    I’d be tempted to do some art for this but I’m not comfortable with handing anything over to the OMF like that. Plus I wouldn’t be cheering anyone up with what I’d be painting.......
  11. Diluted-biscuit

    Mum says she's 'cured' of crippling health condition [ME] thanks to dieting secret [organic food]

    I’ve heard there’s a water filter type machine that passes water through a cartridge of mineral rocks so I think they have beaten you to it
  12. Diluted-biscuit

    OMF Poetry and Art Slam contest 'Hope and Heart for ME/CFS' January 2019

    That would be far better than any inspirational nonsense in my opinion. It’s the reality of ME/CFS.
  13. Diluted-biscuit

    Hair Analysis

    I think hair testing has been shown to be useless.
  14. Diluted-biscuit

    ‘It’s the unknown’ – understanding anxiety: from the perspective of people with multiple sclerosis (2018) Chalder et al

    My position is that we don’t have enough evidence either way to say mental illness is always psychological or always biological and to say one way or the other is an expression of your own biases. I suspect some mental health conditions will be caused by purely biological factors and some will...
  15. Diluted-biscuit

    ‘It’s the unknown’ – understanding anxiety: from the perspective of people with multiple sclerosis (2018) Chalder et al

    CBT does nothing for my brain fog but helps my anxiety and OCD immensely, that’s my reasoning. I find it far weirder that you are so militantly against anything being psychological than people thinking different symptoms can be from different causes.
  16. Diluted-biscuit

    Phase III Rituximab Trial - News

    This still seems unlikely?
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