Search results

The kids not being vaccinated are at risk because of their parents poor decision. There’s also people who cannot have vaccines for genuine medical reasons. Herd immunity needs to be maintained to protect those people, that’s why.

I’m been debating posting this or not as I’ve not wanted to seem ‘hostile’ but I have to ask. You said earlier in this thread that when you are asked questions you often direct people to Jeffs website for the answers. To me that is endorsing the information including the surgeons. Am I the...

I get this as well, I always crash back down again but there’s always that little voice of hope every time I have a few days of feeling not so awful.

Has anyone heard if someone with ME has recovered after some other kind of serious surgery before? I wondered if there was anything about the surgical procedure itself that could cause remission in some cases?

I can’t see if I can post on b&w at the moment as it’s out of the opening hours but I can sign in and view the forum fine. Do you use twitter or Facebook? You seem to be able to contact them there. The only other thing I can think of right now is to delete your cookies in your browser or to try...

I don’t think it’s easy to do that at all. Some people will mislead themselves over 2+2=4. *edit* not talking about anyone in particular on this site.

Yes, that was what I was trying to say really. That help with home care could be taken care of with the separate system of PIP.

Better guidelines with regards to assessing ME/CFS sufferers for PIP would help with this side of things. The current ones are mixed at best and of course the system is bad on top. This is outside of what jonathan is talking about here of course and better NICE guidelines would hopefully lead on...

I’ve also wondered about this one. I’m always amazed that cognitive activity can seemingly cause pain and aches in my muscles. I’ve always assumed that whatever causes PEM is triggered when I use too much energy and it doesn’t matter if that’s physical or cognitive activity. It’s a hard one to...

I’m just too cynical after so many false starts over the years. I know one day they will find something but I’m keeping my expectations low for the immediate future.

I highly doubt any fact sheets about ME will make any difference. They or you would be better off contacting the CAB for advice. Their local MP would also probably be able to help.

I’d really rather this stuff wasn’t associated with ME advocacy. It’s just way too divisive in my opinion.

Doesn’t seem like it. I think its good to highlight issues if certain ethnicity’s are not being diagnosed (not sure if this is the case or not). I’m just not liking the pattern I’m seeing from them at all.

Certainly helps them to control the outcome. I guess at least they write their bias for everyone to see.

There’s all kinds of activism.

Doesn’t feel like it in mine!

I don’t have any experience with sound proofing but I do know someone who has a general builder promise to sound proof an extension for an ME sufferer. He failed to make much of a difference unfortunately so id recommend getting quotes from a few specialist companies rather than just general...

I have mixed feelings on this. They already reassess ESA on the basis of a PIP assessment and visa versa sometimes so this just takes that further and won’t necessarily mean if you lose one you’ll lose both. On the other hand the system is utterly terrible and I’m always concerned they will make...

Perfectly put.

I sweat like crazy during the day and night. I’d like to know what data his statement is based on.