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I dunno. My balance is worse when I'm in a flare (more fatigue) of some sort.

Thanks for the review. I saved myself the distress of watching this.

Many have post-infectious POTS, unfortunately many won't be properly diagnosed and won't receive treatment. I have no clue what treatments will be available for them in the future, but with all the rehabilitation centers opening up I'm guessing it isn't going to go well for them. A young...

How massive metabolic changes immunometabolism affect intracellular bacteria? https://science.sciencemag.org/content/371/6527/400

We all have different experiences. My experience is similar to yours, but I didn't have cognitive symptoms until after I was recovering from PVFS 6 years after viral onset. I started exercising again, which of course made me worse, that's when delayed PEM and the cognitive issues started...

https://immunology.sciencemag.org/content/6/55/eabe4782?utm_campaign=SciMag&utm_source=JHubbard&utm_medium=Twitte

It was Dr. Bell who said it was around the five year mark when improvements might lead to a recovery. I started feeling major improvement (80-90%) around the 5-6 mark, but I hadn't 'discovered' PEM yet.

Canada isn't ready to deal with influx of those disabled from COVID: advocates.

@Ravn What finally made me accept a diagnosis of ME was 1). a relapse after feeling almost fully recovered for 9 months 2). delayed PEM which is not normal.

https://www.nature.com/articles/s41586-020-03160-0

I always feel better after a blood draw and a hair cut. Don't ask me why. I have no clue.

The first elderly woman to be vaccinated in Québec contracted COVID 2 weeks later, but had very mild symptoms. The vaccine may have saved her life. That would have made her 'feel better' for sure.

Does this mean that they feel better psychologically from the 'experience' of being vaccinated? What an odd thing to say.

I was given the advice without any explanation as to why it was important, and there wasn't internet back then to research it. The term PEM only came into existence around the year 2000. I was so happy that I became well enough to start exercising again that I don't think anything would...

I remember being told by a support group in 1992 when I had been ill for a year and relapsed, that I would eventually become disabled. I honestly thought they were fanatics and started distancing myself from them. I did not believe them. My ME doc heavily advised to not exercise but...

Any type of exercise (including slow walking) in temperatures above 27 C would negatively affect my ANS thus making PEM feel worse. Freezing temperatures are ok unless there's a cold wind blowing in my face and slippery snow which leaves me out of breath and more fatigued.

I also developed vertical ridges on my thumbnails 5 years after onset, the ridges eventually started on my little finger ring fingers and middle fingers over the years. Years ago I assumed it was from malabsorption problems, but I still have them so it's caused by something else.

I have a fear of water (aquaphobia) which leads to a natural fear of exercise in water :D When I was trying to float in my buildings heated pool, I would fatigue a lot quicker from the warm water and extra arm movements. That would be a definite- no.

https://www.cell.com/cell/fulltext/S0092-8674(20)31755-4?_returnURL=https%3A%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS0092867420317554%3Fshowall%3Dtrue

How often do they see the patient after surgery? Once? I've seen horrific post-op surgeries performed by orthopedic surgeons that mangled peoples feet. The patients have more problems and suffer knee and hip pain as a result.