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I had an OAT. RBC Fatty acid and Amino Acid test done 2 days after exercise and they were all abnormal. One thing that was normal though was Lactate. I don't experience pain. I wonder if that could be why my lactate was normal?

Tight fitting heavy spandex clothing will do that.

Sorry the B12 shots are causing you to feel sick. I have issues with my B12 getting low too and find supplementation via pill works just as well as injections without the hurt or distressing symptoms.

My urine had an ammonia smell when I had h pylori infection years ago, so did my breath.

@Louie41 let's just say the fruit flies no longer come around :D

It could be hormonal for some. Since menopause my whole body smells like vinegar.

Well I do feel very dehydrated when in PEM, but I don't notice any difference in odour or colour.

I take the raw root and grate it to make golden milk. I find it reduces stiffness/achiness in my hands. I enjoy the drink.

This story resonates with me. Years ago I finally threw out all my feather bedding to discover that I could breathe easier, and my eyes were no longer itchy/red. Feather duvet lung is a small subset of lung diseases called bird fancier’s lung, which is triggered by frequent exposure to bird...

@JenB I was reflecting on my own personal experience when I wrote that I was thankful that I was not referred to a spine/neck specialist. I was a gymnast when I was younger and the radiographs might have indicated an 'abnormality' when in fact it might have been normal in my case.

Yes of course, here in Canada as well :rolleyes:

@JenB I think the big difference was that I was referred to the neurologist by an ME specialist who had 20 years experience and highly recommended him.

My experience with a neurologist back in 1992 was positive. He ordered a lot of blood work to r/o other illnesses and sent to the hospital for various tests for vertigo. I was never sent to a spine specialist/surgeon, thank goodness.

Hip, no.

That's right. During my onset I had extremely elevated antithyroid antibodies, vertigo, mild sore throat/sore ear for months, but never a fever.

@Subtropical Island thanks for your explanation. Do you have autonomic issues?

@Subtropical Island when you start feeling PEM coming on, can you stop the progression by resting? For me, no amount of rest can stop it when it starts, it has to take its course of 48-72 hrs.

Interesting. I have never experienced mild PEM. It's always severe when it hits and I can not push through. I have to full stop everything.

I didn't experience PEM for the first 7 years of illness. When my health improved and I started running again was when PEM set in.

I deleted my original posts. To add . . . PEM symptoms will intensify over the years if you continue to push yourself.