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I also eat quite a bit of lamb which is a high source of l-carnitine.

Thyroid hormone also plays an important role in carnitine-dependent fatty acid import and oxidation. In this case it seems if you are hypothyroid it might have a more positive effect on energy output?

ALCAR and ALA noticeably improved my cognitive function years ago, but I'm not sure if it improved my physical energy. I had to discontinue after 3-4 months because it made me feel jittery and negatively affected my sleep.

Where did you read this? I have only seen developments of PTSD post SARS.

My impression based on Dr. Leonard Jason'd past questionnaires is that he did not fully understand PEM very well.

They are taking passengers temperature while boarding or on planes for the lunar year.

Is POTS an Autoimmune Disorder? Autonomic experts now agree that positivity for ganglionic nicotinic antibodies at low titer (i.e., below 0.2 nmol/L) has no clinical relevance for POTS, as these can be detected in up to 5% of healthy controls...

@Nathalie Wright could it be the concussion that is making you feel worse atm? Or it could be 'die off' symptoms from taking the abxs? I was treated with abxs for h pylori many years ago and initially felt worse, but it only lasted a few days, and over the course of the next...

I'm still a hot mess since the age of 52.

HV for ppl with MS

My understanding is that they are saying that sickness behaviours 'contribute' to ME symptoms. I tend to agree in my particular case because I experience both in almost 30 yrs.

Agree. It appears that my GP is updated with ME info and continues to tell me, "well, they haven't figured it out yet" for the last 30 years.

@Creekside are you referring to black seeds aka black cumin? As in Nigella Sativa? Dr. Moreau mentioned thymoquinone, an active ingredient found in Nigella. I took the Turkish formula oil for over a year but didn't notice anything helpful.

It's quite interesting when you pose the question to the GP regarding their own personal experiences. Using reverse psychology puts them very much on the defensive.

This is beautifully written. Thanks for sharing.

The Mayo Clinic lists causes of ataxia. I also have added vestibular dysfunction. Head trauma Stroke Autoimmune diseases (MS etc) Infections Paraneoplastic syndromes Tumor Toxic reaction (side effect of medications) Vitamin E, vitamin B-12 or thiamine deficiency

This is one symptom that I've had for the entire length of my illnesses (almost 30 yrs). When I returned to work for a short period after my sudden viral onset, it was ataxia that set in way before the fatigue began and later relapse. I would walk home from work like a drunk, yet I had...

I think this would make an interesting separate thread to explain your experiences in more detail. I'm very interested in learning different variations of PEM. I have not experienced long term slow PEM (over 4 days) because once it hits, I can no longer continue. Everything stops. Do...

"@JemPD I've walked into the wall several times because I couldn't coordinate my legs after socializing for a couple of hours". The CBT crowd would have a good time with that one- that I deliberately walk into walls for attention :laugh:

@JemPD I've walked into the wall several times because I could coordinate my legs after socializing for a couple of hours.