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What happens if PG relapses and 'recovers' from "ME" again . . . twice . . . within one year? Will he be looking down the barrel of a cannon this time? I think it's best to forget him while we're ahead.

My issue is feeling worse in the morning and feeling much better as the day progresses. Is this a cortisol issue? I feel almost normal after 6 pm. This has always been the case for me for 30 years.

I watched a program recently about how the hallucinogenic chemical psilocybin produced in some mushrooms helped people with major depression in a study that also included supportive psychotherapy. Apparently it has effects similar to LSD. Patients grew their own at home.

The attached term of CFS will continue to haunt us forever.

What's interesting to watch is the shocked reactions from journalists who interview long-covid patients when they tell them that their doctors told them their symptoms are psychosomatic. They are left speechless. And yet here we are.

https://link.springer.com/article/10.1007/s00259-021-05215-4

I experience a feeling of deep dehydration during PEM. It's certainly not the same as normal dehydration from not drinking enough fluids.

The virologist I saw years ago ordered a CT scan to r/o a pituitary tumor years ago based on my symptoms. Everything was normal.

Sigh. Will we see an even 'stronger' come back tour if he recovers the second time around?

No amount of pacing will prevent anyone from developing ME. It might prevent some of us from becoming worse over time, but the pathophysiology is ALREADY in the cards. I agree with Dr. Edwards, it's better to ignore PG and let him fade away. He's overzealous and needs to get off this...

@5vforest You can follow Dr. Jennifer Robblee on Twitter. https://twitter.com/JenniferRobblee/with_replies

https://www.supportbarrow.org/patient-story/thankful-for-headache-expertise-barrow-helped-kimberly-live-again

I didn't develop PEM for several years after onset because I had PVFS and rested for 6 years. When I recovered from PVFS and felt 80-90% improvement, I developed PEM only after I started exercising again. Over the years PEM intensified the more I exercised until I finally realized that...

I have distinctive delayed PEM. If I go over my energy limit I will always get delayed PEM. It doesn't matter how well I feel on any particular day. I highly doubt that the OMF has figured this. Years ago when I didn't have autonomic issues I was a lot more functional. I could go...

From PG: “The virus is certainly causing lots of immunological changes in the body, lots of strange pathology that we don’t yet understand. This is a novel disease. And an outrageous one. The textbooks haven’t been written.” He went on holidays.

I have read over some of PG blogs and news stories from the last several months and I have to say his histrionics are high on the menu: "a roller-coaster of ill health, extreme emotions, and utter exhaustion", "it's a little bit like a grenade has gone off in your hands, and there's damage to...

I did feel that this could backfire. It was too early to make the connection to ME based on own experience with PVFS.

If this is the case, then he should have made a statement that he was misdiagnosed with ME and recovered from PVFS. That is the responsible thing to do as a health professional. This is another disservice to the ME community from the 'stars' of social media.

"I write this to my fellow covid-19 long haulers whose tissues have healed. I have recovered. I did this by listening to people that have recovered from CFS/ME, not people that are still unwell; and by understanding that our unconscious normal thoughts and feelings influence the symptoms we...

A biomarker for PEM just cant' come fast enough.