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@Wonko does it feel like there are rubber bands wrapped around your arms?

"what feels like blood constriction in my extremities" I had this when I was experiencing an 'immune response' after relapsing on antivirals. It was very bizarre, my legs were ice cold and stiff, it felt like my blood circulation had stopped. My arms were also affected.

@JemPD Here is a good article on how soap disrupts the neatly-ordered shell around the virus, dissolving it in the running water and killing the virus. "Because the soap molecules are so similar to the ones making up the outer layer of the virus, the molecules in the lipid bilayer are as...

Some may develop a condition called post-intensive-care syndrome, which can include persistent muscle weakness, fatigue, attention and memory problems, and anxiety.

It doesn't say.

Based on my results in 2003 it says 2.9 (0.5-5.9) 53% was considered 'low' and I was advised to supplement.

I'm not exposed to many people and I get viral infections all the time. I don't catch colds, and not sure if I get the flu because symptoms are all over the place any time of the year. It's even possible that I caught CoVid because a friend I go shopping with has many friends that...

It's a very long confusing stretch to mention JB finding a 'cure' for a small subset of pwME and tagging on all post viral infections to ME.

If this 'treatment' helps improve autonomic issues for pwME, then that would improve QOL. If I didn't have to lie down every half hour I would be a lot more functional!

Double-blinded, placebo-controlled study: These results suggest that HRW may reinforce QOL through effects that increase central nervous system functions involving mood, anxiety, and autonomic nervous function. If this treatment improves autonomic function then that would be a plus.

*Governor Cuomo

@Invisible Woman only people with ME understand this ;)

My personal experience with PEM is that the delayed physiological processes occurs after I go over my limit, but the immediate PEM occurs when my immune system is reacting by an added trigger, allergen etc but it's not as serve. Sometimes (not often) it's difficult to tell because the...

"The frequent use of corticosteroids in our patient group might have promoted viral replication, as observed in SARS and MERS, although these studies only reported prolongation of the detection of viral RNA, not infectious virus. Furthermore, we have no answer to whether longer treatment course...

The cardiovascular system is not mentioned at all. Autonomic dysfunction? This is the most distressful symptom I experience. I can't stand upright, ataxia, slurring words, loss of appetite, dehydration, feeling very hot etc

The thing is that Jason claims to have had CFS post EBV in 1990. This describes HIS experience. This is not the PEM that I experience, not even close.

Dr. Anthony Fauci was very excited yesterday regarding the antiviral drug Remdesivir 'blocking the virus'. https://www.niaid.nih.gov/news-events/nih-clinical-trial-shows-remdesivir-accelerates-recovery-advanced-covid-19 They may never be able to develop a vaccine, but drugs are looking...

Yes, stiffness/soreness/fatigue can be the result of not moving, but elevated levels of plasma cytokines can cause this too. This is the case for me. I have to find a comfortable balance to try to get out and walk and not overdo myself to get some relief. Sometimes the opposite occurs...

My baseline in 2001 was up at 80-90% after 'recovering' from PVFS, but HHV6 and EBV were both reactivated from taking Immunovir that triggered a terrible relapse and reduced my baseline (energy level/stamina) down to 40%. I've never returned to my baseline (energy wise) since then.

@rvallee I literally bought a stairmaster the first year and almost crippled myself. I later sold it to my homecare helper.